Posts - PSP Association | HealthUnlocked

PSP Association

9,317 members • 11,376 posts

All posts for January 2019

PSP and sweating

Hi all! I joined the group yesterday and ending up here was fortuitous! My mum is 77 and was diagnosed with PSP around three years ago, although her...

Hi all! I joined the group yesterday and ending up here was fortuitous! My mum i...

•5 years ago

UTI questions

Need some advice from your wealth of knowledge and experiences on uti and holding urine.hubby was caterhrized at 4:00 am and they got 600 ml of urine ,they...

Need some advice from your wealth of knowledge and experiences on uti and holdin...

•5 years ago

Eye issues?

My husband seems to be having a lot of trouble with his eyes he says they burn and are hard to keep open...anyone else with this?

My husband seems to be having a lot of trouble with his eyes he says they burn a...

•5 years ago

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Interested in a support group based South Manchester/East Cheshire?

Hi we're thinking of setting up a support group for people in the South Manchester / East Cheshire area and are trying to gauge level of interest. The PSPA may...

Hi we're thinking of setting up a support group for people in the South Manchest...

•5 years ago

Info please

Hi does anyone else’s loved one have sleep deprivation/apnea. They have given hubby a sleep study while he is in hosp and results show that he stops breathing...

Hi does anyone else’s loved one have sleep deprivation/apnea. They have given hu...

•5 years ago

Sister just diagnosed with CBD

I am new to this site and hope to obtain some information and possibly support as my sister (75yrs) has just been diagnosed with CBD...She started having falls...

I am new to this site and hope to obtain some information and possibly support a...

•5 years ago

Aliens and a full moon?

Granny B - you might be right. Tell me, should I change the colour of the moon in the attached pic? Tim x

Granny B - you might be right. Tell me, should I change the colour of the moon i...

•5 years ago

Dad's final good deed

Dad had purchased a tilt back wheelchair in May '18. After he passed I put it in the basement where it sat for a few months. I finally decided to do...

Dad had purchased a tilt back wheelchair in May '18. After he passed I put it i...

•5 years ago

PSP Awareness... long winded

I’ve been feeling blah… apathetic, bundled with a heaping share of pain and stiffness over the last few days. I sit here in my chair with my laptop in my man...

I’ve been feeling blah… apathetic, bundled with a heaping share of pain and stif...

•5 years ago

Has anyone tried...

Has anyone tried adipose tissue-derived mesenchymal stem cell therapy? Conclusions : "These results are encouraging and hopeful for further studies in patients...

Has anyone tried adipose tissue-derived mesenchymal stem cell therapy? Conclusio...

StayAtHomeDaughter

•5 years ago

Mom diagnosed with atypical parkinson n psp

Hi, My mom has been diagnosed with Atypical parkinson n psp. She has been having mild symptoms over 3-4 yrs n doctors just kept treating her for depression ....

Hi, My mom has been diagnosed with Atypical parkinson n psp. She has been havin...

•5 years ago

Has anyone found a thickener that is more palatable than the powdered one used by the NHS?

My husband is currently on quite a high dose of thickener for liquids, following aspiration pneumonia. He finds it pretty disgusting (wallpaper paste a good...

My husband is currently on quite a high dose of thickener for liquids, following...

•5 years ago

Side affects

Hi. Has anyone suffered side affects from using Scopoderm patches. I can’t decide whether its side affects or just progress, Colin is now not sleeping through,...

Hi. Has anyone suffered side affects from using Scopoderm patches. I can’t decid...

•5 years ago

Botox

Hi y'all. This is a medical Botox procedure for blepharospasms. I've been receiving the injections for three years... they're effective for me. I wrote about...

Hi y'all. This is a medical Botox procedure for blepharospasms. I've been receiv...

•5 years ago

A newcomer - Mum with PSP

Hi, I have been following posts on here for a while, but I wanted to say hi. My mum has PSP - diagnosed 3 years but early signs 5 years ago. She is 67 and now...

Hi, I have been following posts on here for a while, but I wanted to say hi. My ...

•5 years ago

No more wrinkles... just a shiner

Botox 2 - Tim 0

Botox 2 - Tim 0

•5 years ago

Peg, when to discuss?

At what stage do should you discuss inability to eat and use of peg? Who instigated the discussion?

At what stage do should you discuss inability to eat and use of peg? Who insti...

•5 years ago

Itching caused by psp

I heard or read somewhere that itching is associated with psp. Has anyone else had this problem, my head, face, ears and arms itch constantly.

I heard or read somewhere that itching is associated with psp. Has anyone else ...

•5 years ago

Snow-ageddon

We have not had this much snow at one time in many years. We ended up with about 11 inches (27.5cm). Still have some flurries this morning. Ron

We have not had this much snow at one time in many years. We ended up with abou...

•5 years ago

Husband has cbd over 12 years. Getting into some serious issues with dementia/ sundowning. Need help with effective drugs people have trie

Husband has CBD over 12 years. Have tried various methods for dementia/ sundowning issues. Would like help from anyone who has tried effective drugs.

Husband has CBD over 12 years. Have tried various methods for dementia/ sundown...

•5 years ago

Worried

Yesterday I was about to take my husband home from rehabilitation at hospital ( he went in on Dec 10th and transferred to rehab. On 16th, but did come out for...

Yesterday I was about to take my husband home from rehabilitation at hospital ( ...

•5 years ago

Another first

Made the decision have separate the beds,I'm staying in our room but for 39 years we have slept together.I was having a very difficult time to get him to...

Made the decision have separate the beds,I'm staying in our room but for 39 year...

•5 years ago

The PSP Triple Crown Challenge... again

Okay family and friends, here's the link again. To open press your Ctrl key and click. This opens the link on my end... should work for you too. Sorry Granni B...

Okay family and friends, here's the link again. To open press your Ctrl key and ...

•5 years ago

The PSP Triple Crown Challenge

This is for our friends and family in the land(s) down under. Being summertime and scorching hot weather, now would be a great time to get the Challenge...

This is for our friends and family in the land(s) down under. Being summertime a...

•5 years ago

ALWAYS TRYING NEW THINGS...

Has anyone tried Glutathione?

Has anyone tried Glutathione?

StayAtHomeDaughter

•5 years ago

So sad

Sorry I have not been on the blog for a long time, I miss you all, but just can’t bring myself to do much. I have had this horrible cold since Christmas Eve...

Sorry I have not been on the blog for a long time, I miss you all, but just can’...

Yvonneandgeorge

•5 years ago

Update as promised

Hi all you lovely people who answered my plea for 'any advice please at this stage'. I had the Physio and OT visit yesterday they assessed my caring problems,...

Hi all you lovely people who answered my plea for 'any advice please at this sta...

•5 years ago

Also for sonokaKharb

Like dw 123456 ,this is the only way I know how to post for you.

Like dw 123456 ,this is the only way I know how to post for you.

LuisRodicioRodicio

•5 years ago

I'm new to this site, my husband has PSP, recently diagnosed

Crispin, 77 yrs old, was diagnosed early December. Mid December he got sick and PSP symptoms rushed to the fore - loss of balance and swallowing issues. He's...

Crispin, 77 yrs old, was diagnosed early December. Mid December he got sick and...

•5 years ago

Long but interesting article

https://emedicine.medscape.com/article/1154074-overview It is about the similarities and differences of the Parkinson-Plus diseases. It is long and in places...

https://emedicine.medscape.com/article/1154074-overview It is about the similari...

•5 years ago

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