Feels like vibrating as if i were a cell phone.

[FaithlyHopeful]

Last two days while in bed have felt like my body was vibrating like a cell phone. Doesnt last long and is not painful. First time it was just my head but this morning it was my whole body. Just wondering if anyone else with psp has had this or if it has nothing to do with the disease. I have now had 3 infusions in the clinical research trial and have felt no changes until this.

[Marie_14]

Sorry to hear this. You need to let your doctor's know what is happening to you. You know that though? Be brave. It might not be anything to do with the trial?

Marie x

[Dadshelper]

Let your doctor know and whoever is the point of contact in your clinical study. Being in a study does separate you a bit from other PSP patients who are not in the same study.

Ron

[Hidden]

My husband uses to have what I called head seizure,his head would vibrate very very fast ,not a lot of motion but vibrate.I would have to say that he was in his 2 ND year and continue till a least 7th year,only a couple of a day at most.He still has the odd one and he's is now going to in his 10th year.

Take care

Dee

[daddyt]

Yes... be sure to let the trial doctor/coordinator know about these experiences, they're definitely neurological. That said, early on in the disease I experienced similar feelings. I called them brain zaps... very low voltage shocks - no pain either and certainly not debilitating. Most of the time I felt them in my head, and other times they would travel down my trunk, but never to my legs.

Tim

[Peppersalt]

Hi I don't have psp ( my mum does ) but I do get the same internal vibrating feelings you described. Mine are a symptom of my multiple sclerosis which is also a nurological disease.