2019 – The Year for a Cure
2018 has passed… another year for the history books. It was the year of the left, the year of the right and everything in between. For many, it was a good year and for others… not so much. In our group, we said goodbye to a number of PSP warriors who had fought the good fight against an adversary, hell bent on taking prisoners and eventually defeating them in the end.
I (we) shared in each and every loss of a loved one, often praying a silent thank you for their release from the clutches of this insidious disease. We have others who are further along into the struggle, praying and remaining hopeful for promising results into ongoing research. It is shared hope… a common thread between us.
We have also welcomed new members to the group… the group no one wanted to belong too, but are grateful it is here. PSP is a family affair, affecting not just the patient, but their loved ones as well. The group has become a safe place for most to share experiences, wins and losses, information and ideas and support for others along the journey. I’m grateful for those who, having gone through their own personal loss of a loved one to PSP, choose to actively remain engaged in the group.
Now, more than ever, we as a world-wide group must use social media platforms to raise awareness for PSP, CBD and MSA. Awareness creates understanding, understanding creates support, support for research towards treatment-cure. I know how difficult it can be after a trying morning, afternoon, night or day to muster up the strength and thought towards ideas for raising awareness or fundraising initiatives. I think it’s incumbent upon all of us touched by PSP to make an effort… large or small to put a check mark beside; a cure for PSP, CBD and MSA. Lets’ make 2019 the Year for a Cure.
Tim x
Living with PSP 
