Side affects

[Helen119]

Hi. Has anyone suffered side affects from using Scopoderm patches.

I can’t decide whether its side affects or just progress, Colin is now not sleeping through, since being on these patches he is waking up at least 4 - 5 times a night, very confused. Then in the day he does not stop talking even though it is mostly not understandable, gets very angry about things then within 10 mins won’t even remember.

This has not been how PSP has worked for Colin so far, he has been quiet, peaceful and rarely wound up over things, and also was sleeping through the night.

Don’t think there’s an infection, just wondering if it could be these patches causing, or maybe my new normal.

Love and hugs

Helen xxx

[Yvonneandgeorge]

Yes when my husband had them he was very agitated and horrible had to take him off them, would not recommend them. Sadly my husband passed away in October xxxxx

[Helen119 in reply to Yvonneandgeorge]

Thank you for your reply Yvonne and very sad you have lost George. By horrible do you mean verbally as that’s what Colin is doing xxx love and hugs to you xxx

[Yvonneandgeorge in reply to Helen119]

Yes verbally he was horrible, careers could believe how he was acting xxxxx

[Helen119 in reply to Yvonneandgeorge]

Same thing here, he’s been horrible to me and the carers.

I have take the patch off now and am hoping it doesn’t take long for him to be “normal”.

The hospice consultant has just been on the phone and is prescribing atropine drops instead.

Thank you for replying it’s jist a case of wait and see if it was definitely that causing it.

Love and hugs xxx

[kenh1]

My wife has been on them for more than two years with no obvious side effects. I think they are a wonderful simple solution to build up of fluids. They are sold as sea sickness patches. I wouldn't have thought they would have got approved if they had severe side effects.

[Helen119 in reply to kenh1]

Hi Kenh1 I have spoken to consultant and she has agreed it could be the patch, so have removed it now.

Thank

You for your reply

Love and hugs xx

[Tunupup]

My sister had terrible side effects hallucinating and went off her legs. We stopped using them and everything settled down

[Helen119 in reply to Tunupup]

Yes had a bad 4 days with very abusive behaviour and no sleeping and also non stop talking just words really. But now after 24 hours with no patch back to normal, thank goodness.

Love and hugs xx

[blackhill]

Yes, very confused and hallucinations.

[Helen119 in reply to blackhill]

Thank you for replying xxx

[Kaylewis]

My mum who passed in December use these , she was fine on them, used for two years no side effects. X