Posts - PSP Association | HealthUnlocked

PSP Association

9,314 members • 11,375 posts

All posts for April 2017

My Nanna has CBD

Hello. I'm so glad I found this page, 3 years ago my Nanna got diagnosed with CBD, and I didn't know how to react to it, I was so close to her and it broke my...

Hello. I'm so glad I found this page, 3 years ago my Nanna got diagnosed with C...

•7 years ago

Lost

My mom was diagnosed with CBD/ PSP 4 years ago aged 69. Progressed rapidly and she ia now wheelchair bound and lost all apeech and ability to communicate. Now...

My mom was diagnosed with CBD/ PSP 4 years ago aged 69. Progressed rapidly and s...

•7 years ago

Review next week

Well went to see archie again today Consultant came said that he's got care in place now so unfortunately for him I told him there's no package now in place...

Well went to see archie again today Consultant came said that he's got care in ...

•7 years ago

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Sunny days...

Morning all, I have been getting my dad out and about the last few days. Cafe, local farm (school hols so have the 10yr old with us). The outings are short and...

Morning all, I have been getting my dad out and about the last few days. Cafe, l...

•7 years ago

Stopping and starting eating and drinking

My lovely mother is still here. I think. She is now totally paralysed - can't move a muscle even to smile or show she recognises any of us. No speech, and the...

My lovely mother is still here. I think. She is now totally paralysed - can't mo...

•7 years ago

MND carer seeking information

My husband has mnd will this forum have useful information to help us?

My husband has mnd will this forum have useful information to help us?

•7 years ago

Aching eyes

Hi there my father was diagnosed with P.S.P. roughly 4 years ago. He constantly complains of sore eyes from morning to night. We have tried various eye drops...

Hi there my father was diagnosed with P.S.P. roughly 4 years ago. He constantly ...

•7 years ago

A chc review

Well been to hospital today and archie is having a review on chc but cannot be done for a month The social worker has gone back to them and said I'm not having...

Well been to hospital today and archie is having a review on chc but cannot be d...

•7 years ago

Chair problems

This is my first post. Since my husband is still waiting for an official diagnosis (we are seeing a specialist at UCSF tomorrow after a 6 month wait- but from...

This is my first post. Since my husband is still waiting for an official diagnos...

•7 years ago

Who are your guardian angels and why?

None of us would be involved in this community without the unselfish help of guardian angels (religious or not). I'd like to know about yours if you wish to...

None of us would be involved in this community without the unselfish help of gua...

•7 years ago

Help with a blue bage

Can I get help with a blue bage or car tax if my mums on the lower rate of Attendance allowance thank you

Can I get help with a blue bage or car tax if my mums on the lower rate of Att...

•7 years ago

Cares help

Hi I've been looking after my mum for a number of years now she lives at a sheltered accommodation just round the coner from my house when I applied for cares...

Hi I've been looking after my mum for a number of years now she lives at a shel...

•7 years ago

i have a severe involuntary moaning issue please help

I moan all day and night people get irritated with the noises that I make also make fun of me I can't even go to stores because of this moaning issue please...

I moan all day and night people get irritated with the noises that I make also m...

•7 years ago

Has IT changed your spiritual or religious beliefs?

A difficult question to answer for me. My sense of loneliness and abandonment sometimes affects how I feel about God. Other life experiences haven't helped...

A difficult question to answer for me. My sense of loneliness and abandonment s...

•7 years ago

How to search this forum for issues

Hi folks Hopefully this might help someone. The search engine on this site is poor. If you want to find something search with Google in you browser and type...

Hi folks Hopefully this might help someone. The search engine on this site is ...

•7 years ago

FTD Disorders Registry is now live

The FTD Disorders Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD...

The FTD Disorders Registry is an online database to collect information from tho...

•7 years ago

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My dad died this morning.

So fortunate he went in his sleep.. things were going badly, no more walking, hardly talking, hardly eating... I guess his heart had had enough. So grateful...

So fortunate he went in his sleep.. things were going badly, no more walking, ha...

•7 years ago

Ottawa, Canada

My mom was only diagnosed with PSP about a year ago - having been declining without a diagnosis for several years. The disease is quite advanced now - she...

My mom was only diagnosed with PSP about a year ago - having been declining with...

•7 years ago

Morning all

Hi Went to hospital yesterday to see Archie His observations was abit low to me Bp 98/78 Sats 92 Temp 37.4 When I asked they said they were fine his...

Hi Went to hospital yesterday to see Archie His observations was abit low to m...

•7 years ago

how can i get my father into clinical trail

my father has PSP since one year and we are living in QATAR( middle east ) and i am wishing to enroll him in clinical trial

my father has PSP since one year and we are living in QATAR( middle east ) and i...

•7 years ago

Hallucinations, confusion and babbling

I have no idea what is going on, so if you have any experience of this PLEASE let me know. G had Peg fitted in January and suffered some mouth trauma, mouth...

I have no idea what is going on, so if you have any experience of this PLEASE le...

•7 years ago

Government compensation

Just got through reading about the cost of the Tomahawk missiles the US just dropped on Syrians, some military and some civilians. The estimated cost of each...

Just got through reading about the cost of the Tomahawk missiles the US just dro...

•7 years ago

Insanity is continuing to do the same thing over and over and expecting a different result.

Just lost the same post twice within the hour. I believe the governments of the world should pay each warrior a $1.59 million dollar stipend. This would be...

Just lost the same post twice within the hour. I believe the governments of the ...

•7 years ago

Be the first to reply

DOES ANYONE KNOW HOW TO GET TO THE ARCHIVE OF FACTS - I HAVE TRIED TYPING IN THE BOX POVIDED BUT IT JUST REMAINS THE SAME

I HOPE SOMEONE IS ABLE TO HELP AS I AM SUFFERING WITH RESTLESS LEG SYNDROME

I HOPE SOMEONE IS ABLE TO HELP AS I AM SUFFERING WITH RESTLESS LEG SYNDROME

•7 years ago

crohns forum

hi im anne from derbyshire would like to chat to others who have crohns desease thank you

hi im anne from derbyshire would like to chat to others who have crohns desease ...

•7 years ago

Hurt all ways

Hi i just found this post - i am from southeast asia . I cried at every post shared here abt yr spouses and hated the disease. I was married for 34 yrs to my...

Hi i just found this post - i am from southeast asia . I cried at every post sha...

•7 years ago

Caught Out

Does any one relate to this? I seem to be able to try to maintain my sanity most of the time, trying to carry on as normal , but suddenly, I get caught out. I...

Does any one relate to this? I seem to be able to try to maintain my sanity mos...

•7 years ago

Obsession with Time

Had any of us PSP victims (we need to find a name for us instead of allowing our disease to define us!) developed a compulsive obsession with knowing the exact...

Had any of us PSP victims (we need to find a name for us instead of allowing our...

•7 years ago

Rejected!

Why does this site constantly dump posts I have labored over (sometimes for over an hour) arbitrarily? It's hard enough to think and write without this extreme...

Why does this site constantly dump posts I have labored over (sometimes for over...

•7 years ago

I'm happy to talk...

My husband passed away June 2016 with PSP. The gradual decline was very hard to take and he needed a lot of care. I miss him like mad but I have a lot of...

My husband passed away June 2016 with PSP. The gradual decline was very hard to ...

•7 years ago

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