I have no idea what is going on, so if you have any experience of this PLEASE let me know.
G had Peg fitted in January and suffered some mouth trauma, mouth hasn't yet healed so Many complained to hospital. Met Surgeon and endoscopy manager on Tuesday. Surgeon prescribed co-amoxiclav 250mg/125mg 3 x daily for two weeks whilst an appointment at Max Fax is organised. No problem there.
Tuesday night I crush one tablet, dilute and give to G via Peg, overnight G is very noisy, shouting, humming etc.
Wednesday G is trying to get herself out of bed, incoherent babbling, and severe confusion and agitation. Gets worse through day as I give 2 more tablets. Mid afternoon I wonder if there is a link between antibiotics and this change, so stop antibiotics. Starts calling out for her late older brother, so as not to upset her I go along with this saying he has just popped out, this appeases her. If I tried to point out she was confused G got very very agitated. Then she starts stroking an imaginable dog, and starts plucking things in the air and "giving" them to me.
Thursday even worse, can't understand much at all, babbling makes no sense, then suddenly talks to a piece of art we have on a wall (elephant) "elephant save me I need a drink" I say she has one, but before I can hand it to her, G cups her hands as if she is holding her mug and pretends to drink, so I ask if it is tasty, I get a vigorous nod.
Then starts calling out the names of her younger late brother, again I say he is out, by this time I'm in tears. G tries to get out of the chair by herself, which simply isn't going to happen without falling over! In the evening I get shouted at, told I don't love her, she doesn't love me, all because I didn't go and put the meal on. What meal? Apparently we were going to have sausages, egg and some sautéed potatoes, (news to me), so she tries to get up to do it herself, as I'm "always on that bloody machine" (iPad) and I never do anything for her.
So I get up and heat up a little rice pudding, and feed that to her, when I'm told that the sausages are delicious!!!
Asked what I'm having and I said I wasn't hungry, get cross again and feeds our Carer's dog "Ted" the sausages, except Ted isn't in our house, nor is the carer.
Then goes back to incoherent babbling and seeing things/picking stuff out of the air.
I had called GP out earlier who had no idea what was happening, but thinking there must be an infection somewhere, check lip &a peg but no sign of infection. Wasn't able to get a urine sample but dismissed that.
Notice that G's eyes aren't running and she hasn't got excess saliva in her mouth, also note that she can animate her face, see clearly and move her head freely.
Friday, G wakes up still confused. I go out for 3 hours respite and leave G with carer. Get back home and G seems a little better, speech is crystal clear (hasn't been like this in over two years), seems less confused. Continues to get better as day goes on.
So I'm thinking it must be a reaction to the antibiotics.
Today, Saturday, fixed glaze back in place, can't move head, slurring words, so back to normal. But then this afternoon out of the blue, mumbles "where is my handwritten letter", tell her she hasn't got one, G gets agitated so then I say I'll have a look.
But what is going on, is it another stage in the PSP, or a reaction?
I can laugh about it now, but over the last three days it's been a living hell.