Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for April 2017

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You may remember V and I applied for funding in September 2015 and were turned down . We went to appeal and after a very delayed hearing in May of 2016 we...

You may remember V and I applied for funding in September 2015 and were turned ...

•7 years ago

Help

I am going through a dark tunnel don't know which way to turn, George's agitation is getting beyond belief, feel so stressed. Last night he was trying to get...

I am going through a dark tunnel don't know which way to turn, George's agitatio...

Yvonneandgeorge

•7 years ago

My husband has been diagnosed with PSP aged 48

5 years ago my husband was diagnosed with Parkinson's Disease but seemed to diterioate very quickly and he didn't have a shake or tremor. He has had many...

5 years ago my husband was diagnosed with Parkinson's Disease but seemed to dite...

•7 years ago

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Marmite

For you UK folks, I found this article interesting, on marmite boosing brain function. Hmm... http://www.medicalnewstoday.com/articles/316767.php

For you UK folks, I found this article interesting, on marmite boosing brain fun...

•7 years ago

Sleeping most of the day now

Charles wants to stay in bed now. Hardly opens his eyes, too hard he says. We have a wedge so he can eat in bed. Very difficult as I see dark days coming....

Charles wants to stay in bed now. Hardly opens his eyes, too hard he says. We ...

•7 years ago

Parkinson meds for CBD

Good afternoon to all My mum who suffers from CBD I would say for the last 3-4 years but only diagnosed last year has been told by her neurologist that he will...

Good afternoon to all My mum who suffers from CBD I would say for the last 3-4 y...

•7 years ago

Superhero run/walk to raise funds (a challenge for myself) in memory of my mum who suffered with PSP Plwase give encouragement.

My Mum suffered with this horrible illness for about 9 - 10 years but only was correctly diagnosed in about 2013. We journeyed with her through her illness as...

My Mum suffered with this horrible illness for about 9 - 10 years but only was ...

•7 years ago

I am a carer of a gentleman in his 70's who has PSP. Coughing and chocking are becoming a huge problem for both my client and his wife.

Hi, I am looking for any advise that could help my client. During drinking and eating my client coughs violently, it would seem he is trying to clear his...

Hi, I am looking for any advise that could help my client. During drinking and e...

•7 years ago

Is there ever a good death with PSP or CBD?

My mother is coming towards the end of the CBD path now - very thready swallow, no interest in food, purses lips shut for meds, no speech or facial or other...

My mother is coming towards the end of the CBD path now - very thready swallow, ...

•7 years ago

LOOKING FOR POEPLE IN S A WITH PSP

i am 63yaers old.I am denosis with PSP IN Jan. Neurplogist saud there is no cure.I walk difficult, swallow and chochs alot. Even my eyes is not moving.

i am 63yaers old.I am denosis with PSP IN Jan. Neurplogist saud there is no cure...

•7 years ago

The PSP Chronicles March 2017

https://wordpressco900.wordpress.com/…/the-psp-chronicles-m…

https://wordpressco900.wordpress.com/…/the-psp-chronicles-m…

•7 years ago

Not another ride!

Well, after a weekend where I thought I had lost him, he's baaack. Happy, eating, talking etc. I'm very afraid because as everyone here knows, PSP is...

Well, after a weekend where I thought I had lost him, he's baaack. Happy, eatin...

•7 years ago

“OTSD” (Ongoing Traumatic Stress Disorder)

At EC's suggestion I am re-posting a link to an article as well as a YouTube video that I found beneficial. Christine...

At EC's suggestion I am re-posting a link to an article as well as a YouTube vi...

•7 years ago

Don't Give Up On Me

I am so, so sorry for taking this long to post something, anything. I also thank those that went above and beyond by emailing me to which I also didn't...

I am so, so sorry for taking this long to post something, anything. I also thank...

•7 years ago

Low mood

Hi, my dad suffers from depression & is on the highest dose of antidepressant. He says he feels lousy & dwells on everything negative (this happened pre psp...

Hi, my dad suffers from depression & is on the highest dose of antidepressant. H...

•7 years ago

We are at that stage

Took us over a week in the hospital to regulate the choking/pain/etc the best we could. Thankful mom was coherent enough to help my sister and I with the...

Took us over a week in the hospital to regulate the choking/pain/etc the best we...

•7 years ago

The Rollercoaster - not in Disneyland

Going up and down. The PSP Rollercoaster keeps me up at night and down in the day. Keeps me in it's web hanging. Hard to take it day to day and hour by hour,...

Going up and down. The PSP Rollercoaster keeps me up at night and down in the da...

•7 years ago

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