Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for January 2017

Help at Last!

We were visited 12 days ago by nurses from the local hospice. I had asked our doctor if she would ask for B to have some more visits to their day centre. The...

We were visited 12 days ago by nurses from the local hospice. I had asked our do...

•7 years ago

Constipation

my husband has started with constipation is this the second stage. He is still eating ok but is confused. He is in a nursing home, Any ideas for helping him...

my husband has started with constipation is this the second stage. He is still e...

•7 years ago

CBD and legs shaking

Visited mum yesterday and noticed her leg was shaking quite badly. This is the first time I've seen this. Is this likely to get worse and should I get the...

Visited mum yesterday and noticed her leg was shaking quite badly. This is the f...

•7 years ago

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Time for another global caregivers scream.

There was a post by Georgia peach I believe a couple of years ago. Does any one remember it? I think we are due for another followed by a global hug.

There was a post by Georgia peach I believe a couple of years ago. Does any one ...

•7 years ago

I'm not proud

Just had a melt down day. Charles is in the next stages of PSP and the weekends are never ending. I don't even have a minute to shower or get dressed. It's...

Just had a melt down day. Charles is in the next stages of PSP and the weekends...

•7 years ago

Some sage caregiver advice

I thought this might worthwhile reading for all the caregivers dealing with any number neurodgenerative...

I thought this might worthwhile reading for all the caregivers dealing with any ...

•7 years ago

A new beginning I did not want

Well the funeral went well, church full (ok 2/3rds family) but lots of friends and acquaintances from Margaret's groups: tap dancers, Operatic, Court Service...

Well the funeral went well, church full (ok 2/3rds family) but lots of friends a...

•7 years ago

CBD and Al Michaels

Learning More Every Day

Learning More Every Day

•7 years ago

lost without my partner who died from mnd

my partner took mnd and was diagnosed april 2015 and died september 2015 and for five weeks i nursed him at home and watched him fading away before my own eyes...

my partner took mnd and was diagnosed april 2015 and died september 2015 and for...

•7 years ago

Stolen Truck

Hi everyone lots of hugs from Aunt Bev and I we have lots and lots of snow. Well the other day our truck was stolen at the Atlantis Casino in Reno, shouldnt...

Hi everyone lots of hugs from Aunt Bev and I we have lots and lots of snow. Wel...

•7 years ago

Can you say that again, I don't understand

Well we have come to the point of not understanding anything my mother in law is saying. She calls numerous times a day from the home using the carers phone....

Well we have come to the point of not understanding anything my mother in law is...

•7 years ago

Farewell My lovely

Bug's funeral took place on Tuesday. The hymns, music and reading were her choices made over 8 years ago, long before we had ever heard of PSP. With 20/20...

Bug's funeral took place on Tuesday. The hymns, music and reading were her choic...

•7 years ago

Falls

We have had grab rails fitted we're we think the most vulnerable points are but she still falling bad and is hurting herself My daughter is her main career and...

We have had grab rails fitted we're we think the most vulnerable points are but ...

•7 years ago

Guilty

Feeling really guilty, going away with my sister in law, on a cruise in May, my brother will come down and look after George, with careers, why do I feel so...

Feeling really guilty, going away with my sister in law, on a cruise in May, my ...

Yvonneandgeorge

•7 years ago

Winter sunshine

Back to Topsham again, the palest of pale blue skies and a stillness you could feel in the air . The tide was out and the estuary full of wintering...

Back to Topsham again, the palest of pale blue skies and a stillness you cou...

•7 years ago

Current Clinical Trials for PSP, MSA, CBD

https://gallery.mailchimp.com/deb9aafc2eae245fa92ed0cc0/files/CurePSP.01.pdf From a CurePSP post from Janet Edmunson, so you wont have to wade through a list...

https://gallery.mailchimp.com/deb9aafc2eae245fa92ed0cc0/files/CurePSP.01.pdf Fro...

•7 years ago

Choking

My dad has had PSP for around 5 years and is now in a nursing home. Yesterday, when I went to visit him he had a choking fit after sipping his cup of tea. We...

My dad has had PSP for around 5 years and is now in a nursing home. Yesterday, ...

•7 years ago

Ultrasond for parkinson

Dear friends Has anyone tried ultrasond for releiving parkinson symptoms. There was a news that this procedure was very effective! Thanks Rasa

Dear friends Has anyone tried ultrasond for releiving parkinson symptoms. There...

•7 years ago

CHC and care package

Anyone on site know when one might expect a decided care package to commence. Assessed for CHC on Nov 8 , granted on Nov 25, care needs discussed Dec 28 and...

Anyone on site know when one might expect a decided care package to commence. As...

•7 years ago

Carer to my husband diagnosed with PSP

Hi I'm Karen. My husband was diagnosed with PSP in May16. To date he has deteriorated to a point that he is 99% bedridden. His speech, sight, mobility, ability...

Hi I'm Karen. My husband was diagnosed with PSP in May16. To date he has deterio...

•7 years ago

stem cell does it work?

hello friends, 12 months since last here, concerning my sister who has psp, well 12 months on and unfortunately fellow followers know what can happen after 12...

hello friends, 12 months since last here, concerning my sister who has psp, well...

•7 years ago

We said goodbye

Yesterday it was Fred's funeral, I said goodbye to the man I'd spent more than half my life with, I had wondered how I would get through the day, but although...

Yesterday it was Fred's funeral, I said goodbye to the man I'd spent more than h...

•7 years ago

PSP disease

Hello everyone. I am new to the site. I am a support person for my room mate who has PSP. I have taken comfort in reading so many posts. It is so helpful to...

Hello everyone. I am new to the site. I am a support person for my room mate wh...

•7 years ago

Things going a little better

Things are going a little better. I have new insight from talking an hour to a Hospice counselor who leads the caregiver support group I attend. I didn't...

Things are going a little better. I have new insight from talking an hour to a H...

•7 years ago

Guidelines to Applying for CHC (UK)

For anyone wanting to understand /apply for continuing healthcare assessment. ( UK) Attached document explains the process and the 12 areas assessed for which...

For anyone wanting to understand /apply for continuing healthcare assessment. ( ...

•7 years ago

HEADY'S MADE THE FRONT PAGE !

Just got my PSPmatters mag. and there is Heady and Steve. Of course it was written before he died. Its a lovely tribute to them both. Jean x

Just got my PSPmatters mag. and there is Heady and Steve. Of course it was writt...

•7 years ago

My Sister

Now I have a sister , an elder sister who when we meet people insists on introducing herself as my younger sister . I know my caring role has aged me...

Now I have a sister , an elder sister who when we meet people insists on int...

•7 years ago

Drooling

How or is there a cure for drooling?

How or is there a cure for drooling?

Gloria-DeLeon-2017

•7 years ago

Always in my thoughts...

Hello all, sorry i have not been for a chat recently. Been so busy but will check in soon. Just know i pray and think of you all xxxxxxxxxxxx

Hello all, sorry i have not been for a chat recently. Been so busy but will chec...

•7 years ago

Refusing to eat

Mum has yet another uti with horrendous hallucinations which are so upsetting for mum and me . She now sleeps most of the day and night and when she wakes its...

Mum has yet another uti with horrendous hallucinations which are so upsetting fo...

•7 years ago

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