PSP disease

[roxiemcgregor]

Hello everyone. I am new to the site. I am a support person for my room mate who has PSP. I have taken comfort in reading so many posts. It is so helpful to know that many of you are experiencing the same things I am as this disease progresses.

Best

Roxie

[abirke]

Greetings from America, Roxie. A support person for a room mate....wow that's some roommate! It's good that they have you and it's good you found this site it will help in so many ways.

When was your roommate diagnosed? If you have any questions , ideas , answers, or just want to scream we are hear for you. Your roommate may also like to hang out here so be sure and tell them about this site.

Again welcome and may your journey with PSP lead you to a deeper and richer perspective on life.

AVB

Peace I leave with you, my peace I give to you; not as the world gives, give I to you. Let not your heart be troubled, neither let it be afraid. John 14:27

For God hath not given us the spirit of fear; but of power , and of love , and of sound mind... II Timothy 1:7

[Noella21 in reply to abirke]

Welcome to this site. You are an amazing roomate. You may be our first. Welcome to our site . We are glad you found us. We are better carers together. We sometimes may cry ,celebrate and rant and always support each other no matter what happens. You are a special person and we are here for both of you.

[abirke in reply to Noella21]

Thanks Noella! But yah Roxie is an amazing roommate...And we are better carers together...I like that that should be our motto...Better Carers Together!

AVB

[roxiemcgregor in reply to Noella21]

Thanks its great to know that I am not alone on this journey.

[Hidden in reply to roxiemcgregor]

It can be a very long journey and a hard one but you have always someone to get everything off your chest. Love to all on this amazing website Nette

[roxiemcgregor in reply to abirke]

Thanks for your reply. My roomie not well enough to be on here. I have told him about it. I'm looking for insight on staging of this disease as I understand there is not staging so hard to say where he is at with the progression.

[abirke in reply to roxiemcgregor]

No staging is not clear cut enough to have them. Sometimes the patient may even rebound a bit and we are so happy. But as a rule 6 to 9 years after diagnosis....7 to 11 years at first signs of something amiss!

Tell me whats going on in your picture? My weak old eyes cannot see these tiny little pics.

AVB

[roxiemcgregor in reply to abirke]

Picture of my dogs when we were out for a hike in the forest. I had two black labs , they have passed away in the last year 18 months. I have one dog who is part husky and Rottweiler. She is a very friendly lovable dog.

My roomie was diagnosed in 2010

[abirke in reply to roxiemcgregor]

I had a beautiful picture of my husband and dog on a hike.....I lost the picture when I changed phones....

what are your roomies symptoms? Does he have a name or a nickname we could call him? Alot of people go by their first initial....My husbands name is B for Bruce....

I will relook at your pics with new meaning now! thanks

AVB

[roxiemcgregor in reply to abirke]

My Roomie Is Blake.

[abirke in reply to roxiemcgregor]

Another "B"

[BindiLeech in reply to abirke]

as am I Anne!!!! XX

[york]

Welcome to the site and we are here for you and your room mate. If you have any worries or just need us to listen don't hesitate to ask there is always someone to give you a hug an ear or advice.

[roxiemcgregor in reply to york]

Thanks so much.

[cabbagecottage]

Well done you for caring

[D0ttieL0ttie]

Hi Roxie

Where are you based? Whenever you or your room mate need to post be assured there will be one of here to respond.

[roxiemcgregor in reply to D0ttieL0ttie]

Thanks. We live in Sudbury, Ontario

[D0ttieL0ttie in reply to roxiemcgregor]

We are in the UK, but we are all here for each other world wide xx

[Noella21 in reply to roxiemcgregor]

We are in Alberta . We are just a text away. A lot of our issues are similar word wide. Not enough help that is easy to access. Everything is a struggle. There is encouragement, support and good advice. Hugs

[Duffers]

Welcome rosie from harrow, London. Great people on this site. No question too big, small or awkward. Good luck. Marie