CBD and Al Michaels

[RoseanneM]

Learning More Every Day

[RoseanneM]

Hi guys, wow! Ever since my husband Al was diagnosed with CBD I have been in transition!

I thought he would make 5 years but now after 2 he still can talk and get around a little. Also has a good sense of humor!

I quit my job to be here with him but it looks like to me it was a good sacrifice. Funny how life changes your idea on what is important.

Glad to be in the group because I dont want to go to meeting here in town.

[Amilazy in reply to RoseanneM]

Good luck from the other side of the pond. Please keep in touch with the group it will help you both. Tim

[pzagy in reply to RoseanneM]

Hi Rosanne

You are absolutely right about how life changes and what was once important is no longer. Glad to hear Al is still able to get around and that sense of humor will go far.

Welcome to our group, I too am somewhat new....my mother in law has CBD,

Hugs from Toronto

Paola

[AliciaB in reply to RoseanneM]

Hi RoseanneM! The doctor told us in Dec. that my husband has possible CBD.

It has taken a year to get to this dx and I haven't been able to find a doctor in Virginia that is familiar with CBD.

Life is different these days, just trying to find our new normal.

There aren't any meetings near me except for Alzheimer's support meetings. Happy to have found this site.

Alicia

[RoseanneM in reply to AliciaB]

There is no support group here either. I don't think most people even know about cbd, psp or ftd. Anytime a person begins to lose brain functions they just think its Altz.

Even when we go to the neurologist I have to educate him about it.

I have watched every utube video lecture and read everything on the internet.

Thank God I took him to Cleveland Clinic 2 years back. They spent 2 hrs with us and looked at his MRI and gave the diagnosis.

[nakkdo]

Hi

My husband has the dreaded CBD.

He was diagnosed in 2011. He too can still get around, all be it very, very slowly.

We have to have a sense of humour, it seems to be the best tonic.