Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for January 2017

Coughing and clearing throat

Hi everybody! I haven't posted in a long while. As you all know, some days are extremely busy and mine have evolved into months. I haven't even had time to...

Hi everybody! I haven't posted in a long while. As you all know, some days are ...

•7 years ago

Educational Video

The attached link is from The Brain Support Network. Robin Riddle included her notes and a YouTube video link that would be beneficial for diagnosis of PSP...

The attached link is from The Brain Support Network. Robin Riddle included her ...

•7 years ago

The peg

Hi my brother Richard has suffered with PSP now for over 4 years. He was due to have a peg fitted back in November but when it came close he didn't want it....

Hi my brother Richard has suffered with PSP now for over 4 years. He was due to...

•7 years ago

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Death Certificate

Morbid subject, I know, but I think important. Steve,s death was recorded as PSP. My daughter was very surprised as it normally, some silly secondary cause,...

Morbid subject, I know, but I think important. Steve,s death was recorded as PSP...

•7 years ago

Deterioration- will we now qualify for CHC assessment ?

Just before Christmas we had the CHC checklist however we did not trigger to go forward with an assessment - how much further down the PSP journey do we have...

Just before Christmas we had the CHC checklist however we did not trigger to go ...

•7 years ago

My heart is breaking

Because of the PSP, Fred was unable to fight the aspiration pneumonia, he passed away at 10.30 this morning, unfortunately in hospital, but I'd stayed the...

Because of the PSP, Fred was unable to fight the aspiration pneumonia, he passed...

•7 years ago

The trumpets sounded on the other side

Margaret lost her private battle with PSP and the palliative drugs. She slipped quietly away at 0825 this morning, while my back was turned for moment, one...

Margaret lost her private battle with PSP and the palliative drugs. She slipped...

•7 years ago

The best yet. !!

Husband showing rather rapid deterioration over past month, never see GP as not been a need and there is no treatment as such. Choking episodes are a little...

Husband showing rather rapid deterioration over past month, never see GP as not ...

•7 years ago

Difficult decision coming

Hi. I am new to this community but have been reading many posts in search of some insight that may help me in making a decision that is imminent. My dad was...

Hi. I am new to this community but have been reading many posts in search of som...

•7 years ago

Hi!

What can I say? Your love and support, over the past few days has totally overwhelmed me. Steve's last few days were very peaceful. He slowly drifted away....

What can I say? Your love and support, over the past few days has totally overwh...

•7 years ago

Ceiling hoist picture for Audrey.

Old nor figure out how to attach a reply so bear with us the rest of you.

Old nor figure out how to attach a reply so bear with us the rest of you.

•7 years ago

For US Medicare patients

Good news: Did you know there will be an increase in benefit cap limits for outpatient therapy, physical therapy, speech-language pathology and occupational...

Good news: Did you know there will be an increase in benefit cap limits for outp...

•7 years ago

The PSP Chronicles... December 2016

https://wordpressco900.wordpress.com/2017/01/01/the-psp-chronicles-december-2016/ Unfortunately PSP does not recognize holidays still, I hope everyone had a...

https://wordpressco900.wordpress.com/2017/01/01/the-psp-chronicles-december-2016...

•7 years ago

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Happy New Years Friends

Every thing is good just got Aunt Bevs MRI done so Monday will make doc appt. and see how things are going to get her in the CHAIR hope all is well with you...

Every thing is good just got Aunt Bevs MRI done so Monday will make doc appt. a...

•7 years ago

Bloody mucus

its 4:00am and we are not getting any sleep.Neil has been coughing since 10:00 pm and it is a stinky bloody looking mucus. Not sure if he has strip his throat...

its 4:00am and we are not getting any sleep.Neil has been coughing since 10:00 p...

•7 years ago

CBD - Scratching and poking eyes

Hi, My father has CBD and is in the final stages no confined to his bed. He seems comfortable enough as far as we can tell - he no longer has any speech at all...

Hi, My father has CBD and is in the final stages no confined to his bed. He seem...

•7 years ago

Movement specialist

Anyone been to see a movement specialist at Salford royal?

Anyone been to see a movement specialist at Salford royal?

•7 years ago

Heady's Wisdom everyone needs to read!

I asked jokingly, how does one take care of themselves. Heady came back with an answer that should be read by the young carers in this disease as well as the...

I asked jokingly, how does one take care of themselves. Heady came back with an ...

•7 years ago

Happy New Year

Happy New Year to all of you on here. I write this with feelings of mixed emotions for myself and my family and I am sure there are many here who feel the...

Happy New Year to all of you on here. I write this with feelings of mixed emotio...

•7 years ago

Happy New Year

Wishing you all a Happy New Year. Please remember to make yourself a priority and take care of yourselves. It's one of the most important things we can do for...

Wishing you all a Happy New Year. Please remember to make yourself a priority a...

•7 years ago

Well, Hows 2017 Going So Far?

My mom was a heavy drinker back in the day. However, she would refrain from libations on New Years Eve declaring, "We shouldn't start the year off with a...

My mom was a heavy drinker back in the day. However, she would refrain from lib...

•7 years ago

Stalevo 125

My husband suddenly decided to stop taking Stalevo, so he did. I was not prepared to fight over this one, so I let him. Has anyone any experience of this drug...

My husband suddenly decided to stop taking Stalevo, so he did. I was not prepar...

•7 years ago

Happy New Year

Wishing all a Happy New Year and praying for strength, courage and patience to meet the challenging year ahead.

Wishing all a Happy New Year and praying for strength, courage and patience to m...

•7 years ago

Hello from Finland! Would appreciate any helpful advice, I am new a new member.

Hello to you all! I am writing from Finland and my dad was diagnosed just last year with PSP. The symptoms had been there for a quite a while (about 5 years)...

Hello to you all! I am writing from Finland and my dad was diagnosed just last y...

•7 years ago

Bailyes on ice before supper.

I spent several hours in The bathroom kneeling in front of the throne trying to coax husband to stand up . R was unable to get up . Frozen in place. I had...

I spent several hours in The bathroom kneeling in front of the throne trying ...

•7 years ago

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