Drooling: How or is there a cure for... - PSP Association

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Drooling

Gloria-DeLeon-2017 profile image

How or is there a cure for drooling?

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Gloria-DeLeon-2017
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12 Replies
abirke profile image
abirke

There are several meds. Your neurologist may have to help you work through whch are best for you. My husband takes Glycopyrrolate......it does not work that well a thing we will talk about when we see B's dr. Other people use Atropine(?) an eye drop that can also help to dry up the salivary glands,.

My husband alos uses a suction machine. It's loud but it does help him keep the water down....

Goodluck,

AVB

cabbagecottage profile image
cabbagecottage in reply toabirke

How are u getting on with the machine . Which one did u get or was it supplied by the nurse

abirke profile image
abirke in reply tocabbagecottage

Hey CC

I got the vacu-aide quiet suction unit It's better, though the utube video may be a little slanted toward this machine. I was under the impression there would be very little sound....it says it's about 55Dbs which I can believe because we can talk while it's on...but it's still loud.....However and again it is better than the 68 db unit...I had to buy it with my own money. Insurance would not pay for it.

AVB

DoreenC profile image
DoreenC

The Atropine eye drops have been working well for my mum

Georgepa profile image
Georgepa

V has Hyoscine patches - one behind each ear every other day - they have some success but some days are better than others . .

easterncedar profile image
easterncedar

Atropine works very well for my guy, one drop twice a day. The neurologist recommended Botox, but we found the drops so effective we didn't go through with the injections as we had intended to.

Babowen898 profile image
Babowen898

Is atropine a prescription?

easterncedar profile image
easterncedar in reply toBabowen898

Yes.

Babowen898 profile image
Babowen898 in reply toeasterncedar

Thanks, EC! Will ask for it at dr appt in Feb.

easterncedar profile image
easterncedar in reply toBabowen898

One percent solution, eye drops. Our GP was reluctant to prescribe it, seeing it as something given only to patients near death, but the doctor in charge of the VA palliative care team supported me, and we have had no bad side effects. I use way less than the 6 daily drops allowed. Any more than one at a time makes him drowsy. It doesn't help everyone, but has been wonderful for us; eliminated the suction machine use entirely for ten months now. Good luck!

barbaralee profile image
barbaralee

Just a different point of view for the drops, they made my mom feel like spiders were crawling all over her. I read on here of another person with the same effects. We stopped but I feel like maybe dad gave her to many. But after her excessive saliva is better. Her neurologist also said Botox could help but we didn't try it as of yet.

cabbagecottage profile image
cabbagecottage in reply tobarbaralee

Didn't work long for John . The aches caused dreadful delirium hallucination for days and he only had the small patch behind his ear for thre hours . Was in a an awful state could breathe and choking .

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