Hi folks
Angela Sherman (CHC Advocate and Adviser) has just published a 10 Tips about Care Fees.
Its a very good list for those who are at the beginning of the Continuing Health Care Journey
caretobedifferent.co.uk/10-...
I hope its useful to someone.
Best
Kevin
Thanks Kevin wish I had known some of these points before we started, but also there is ammo for the reassessment.
Tim
Kevin all Keith's so called knowledgeable professionals i.e. Social worker, specialist OT, Parkinson's nurse and several district nurses kept telling me Keith wasn't entitled to CHC, it was just for end of life, BUT ITS NOT, if I had believed them we wouldn't have got any further, I have told them all they need to re-read the rules so it doesn't happen to other patients! It's disgusting really, I'm so glad I didn't give up and kept on pushing, I couldn't wait to see their faces when we were given fast track CHC! 🤔🤗😀
Hi Patricia
I have read that for every person who gets CHC there are three or four who are refused 'in error' That is one hell of a failure statistic.
Good for you for fighting. The more of who do the better.
The panel meets to discus our new funding on Monday... I have my key in the lock and my finger over the red button just in case, but I so don't need another fight...
(Sound of heart sinking).
Kevin
xxx
Thank you Kevin, i will check this out, it's been a very stressful week sorting the finances out, today is the first day of permanent nursing of home, big changes financially and emotionally so It will certainly be something I need to do. my heart is heavy tonight but thank you for your help. X
Bless you nana
Thinking of you, big hugs!! X
Thank you Satt, I need them xx
PSP is good at making a heavy and, for me, a hurting heart.
Bless you.
I will help as much as I am able.
Rest now. You have got this far. You have been strong.
Let's see if we can't make it a little better.
Warmly
Kevin
xx
Thank you so much, I feel better knowing you all care xx
Thanks for this and all your posts on CHC. Mum got declined this week and the hospice feel she doesn't meet for eligibility as yet as she has picked up a bit since her hospital stay in April but to get a reassessment done as soon as she starts to decline again. My brain in mush trying to battle with all so think will leave it for now.
For goodness sake spiral sparkle what a joke!
What can your mum do for herself?
Do you have to help with feeding, drinks, medications, cooking, washing, dressing,?
Is she incontient?
How's her mood, speech, memory, etc
I think from what I know of you and your mum you SHOULD be qualifying for chc!
SCREAMING!!!!!! On your behalf
Don't leave it, don't let em win! I'll text ya x
I will say little now as you want a break from it.
Just to say the hospice is highly unlikely to know the regulations - they are probably working on experience of others applications outcomes.
When you are ready and if you like come back to me by private message. It will take me moments to help you put a formal appeal letter in.
Look after yourself Spiralsparkle.
Thank you so much Kevin. I will take you up on the kind offer. You are an earth angel.
Well mostly I'm a cross cantankerous old B... But I care 
This is tough for all of us and I get cross at the way the sytem let's us down at times.
Be well
Do you know about palliative care?
Continuing Care
Care times
