Just heard that the wonderfully CHC office, (sorry Georgepa and anyone else suffering without it!) that they have managed to book S into respite near my daughter for 10 days!!! The home has agreed to overlook their normal rule of not booking respite care until two days before.
For once I have been shedding tears in pure joy and relief. S and I will be able to have a break, away from home, my daughter around to help, so we can take S out, I will be able to hopefully spend some quality time with him, without having to worry about feeding, cleaning, will the Carers turn up tonight? All the normal day to day crap, we have to put up with! Plus I will get a much needed break. Have been so close to falling off the edge again, really thought that I would have to be packing S's bag and taking him to his normal respite home today, I know they had the bed ready, as it was recognised that I was crashing. BUT it's not needed!!!!! I have survived, well I know I can get through until next Saturday. That huge black cloud that was pressing down on me has been lifted, if I had any energy, I would be dancing around the room!!!
Today's moral..... There are people out there who care about us, who are trying to look after our needs as well as our loved ones. We just have to make sure they know we exist and bit the bullet and admit we need help!!!
Big group (((((((((((((hugs))))))))))))))
Lots of love
PS. For those of you in the UK, I am on the front cover of a publication!!!! There is a new booklet printed by the PSPA, about cognition in PSP. S and I are the pin-ups!!! Actually, the booklet is very good, explains in lay mans terms the problems we all face on a daily basis. Recommend you all read it!