I'm relatively new to this group and have been more of a silent reader than an active member.
My father was diagnosed with psp in 2013 and is 64 years old. He is still fairly mobile but does need some help walking. He does suffer from stiffness, lack of sleep, restlessness, difficulties with his speech and occasional incontinence.
We have seen the disease progress but it has been pretty rapid in the past few months.
We've been reading up alot about stem cell therapy and are considering giving it a shot. We live in Mumbai, India and would have to travel to Europe or America for the treatment.
I would appreciate it if anyone could help me with travel tips, medication tips etc. even with your inflight experience when travelling long distance with a psp patient. Or any kind advice that would help in making this journey as easy and stress free for my dad.
On another note, I must say that I am so happy to have joined this group. Reading all your posts makes my days easier and sometimes,even smile. I admire all of you for your positivity and courage, for we all know how challengingand heart breaking this disease can be.