I joined the group early on this year with a tentative and provisional diagnosis for my husband F of PSP/CBD. I have followed post and been convinced that it was PSP. As time has gone on the differences in symptoms has become greater. Some are still the same, the palsy, gripping hand, stuttering, shocking. But the dementia, the cognitive breakdown is becoming dominant.
We have had further test and Frontal temporal is now the preferred choice for diagnosis. It may seem odd but I would have preferred PSP. I now have the genetic implications for the children. I am angry, so angry. Waiting for the despair stage and then maybe with luck I will go back to numb.
Is anyone else out there dealing with FTLS?