Posts - PSP Association | HealthUnlocked

PSP Association

9,568 members • 11,525 posts

All posts for December 2014

Gallstones and nafld

Hi all, Merry Xmas to all and hoping you all have the bestest Christmass ever. I am new here nervous scared and confused lol. Just found out I have gallbladder...

Hi all, Merry Xmas to all and hoping you all have the bestest Christmass ever. I...

•10 years ago

Blurred Vision

My husband has been getting botox in his eyes to keep them open for at least 2 years. He does not seem to be getting much benefit for the last 6 months. He...

My husband has been getting botox in his eyes to keep them open for at least 2 y...

•10 years ago

Mucus build up in mouth

Dear all Mum ( Margaret) is in late stage PSP peg fed / catheter for last two years - on oxygen overnight she is building up mucus which kind of solidifies to...

Dear all Mum ( Margaret) is in late stage PSP peg fed / catheter for last two ye...

Lovelyliverbird

•10 years ago

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Sewing

Today I did sewing ........... in retrospect I think it was probably a bad idea to sew a button on my trousers whilst still wearing them .

Today I did sewing ........... in retrospect I think it was probably a bad idea...

•10 years ago

Morning is best

Just a quick question. When Brian gets up in the morning he is more able to stand etc as the day goes on he is less able to weight bare. Even after having an...

Just a quick question. When Brian gets up in the morning he is more able to stan...

•10 years ago

Hello everyone

Even though I lost my mum 6 months ago I still come on this site nearly everyday and feel your headache watching loved ones deteriorate is the hardest thing...

Even though I lost my mum 6 months ago I still come on this site nearly everyda...

•10 years ago

Christmas tree

Very beautiful it is too! I am sure we all process things at some level, just continue to carry her with you. It is going to be a lovely day. Hope the mince...

Very beautiful it is too! I am sure we all process things at some level, just c...

•10 years ago

Christmas here too

After several heart attacks we got our tree up and running . It seems unbelievable that this time last year my wife was able to dress the tree - something she...

After several heart attacks we got our tree up and running . It seems unbelievab...

•10 years ago

Worse for wear but I'm still here:)

YI YI YI. The previous 4 months to the present have been trying and rather awful; hoping to see this 'bout of 'stuff' start improving. Think the last post I...

YI YI YI. The previous 4 months to the present have been trying and rather awful...

•10 years ago

My mother has been affected by PSP Parkinson and her health is deteriorating

My mother has been affected by PSP Parkinson and her health is deteriorating. I have tried everything allopathy , Homeopathy ,Ayurveda .. I feel I have lost...

My mother has been affected by PSP Parkinson and her health is deteriorating. I ...

•10 years ago

IT'S BEGINNING TO LOOK A LOT LIKE CHRISTMAS!

Last year I had to put the tree in a room Colin couldn't get to as I feared he would fall on it. This year he falls as soon as he stands ( if I don't get to...

Last year I had to put the tree in a room Colin couldn't get to as I feared he w...

•10 years ago

The storm

Last night I lay in my bed listening to the rain and the wind lashing and buffeting the house , making the tiles jump and chatter on the roof - sleep...

Last night I lay in my bed listening to the rain and the wind lashing and buf...

•10 years ago

Seizures? Anybody?

My husband has had seizures with his PSP for 8 years now. He has taken high doses of meds for seizures but the side effects are troubling. I've been wondering...

My husband has had seizures with his PSP for 8 years now. He has taken high dose...

•10 years ago

PSP has taken my mum away from me.

My mum has just recently passed away on 7th December this year, Her death has devastated myself and my family, this horrible disease has ripped us apart, my...

My mum has just recently passed away on 7th December this year, Her death has d...

•10 years ago

Didn't work

Well turns out I am not the Clever Kidnap Caper I once was as soon as I walked in they said she is not going home she has to go to a rehablition place because...

Well turns out I am not the Clever Kidnap Caper I once was as soon as I walked i...

•10 years ago

Eyes

I have been going to an optician but my glasses don't help much. Thee are specialist ones called 'Eyes on Oxford' here in Perth - they are consultants to...

I have been going to an optician but my glasses don't help much. Thee are specia...

•10 years ago

Daily living

So frustrating! G is a smart man and sometimes that can be good and at others down right bad. We've both been sick since thanksgiving. We've had the...

So frustrating! G is a smart man and sometimes that can be good and at others do...

•10 years ago

Were Going

Yeppy-Yea!!!!!!!! appt. at UCSF starts Feb. 23-28. UPDATE I AM GOING TO BREAK AUNT BEV OUT SHE DOES NOT WANT TO BE FED THROUGH A HOSE WRITE BACK AND GIVE UP...

Yeppy-Yea!!!!!!!! appt. at UCSF starts Feb. 23-28. UPDATE I AM GOING TO BREAK A...

•10 years ago

Skye 07

Hi Everyone, I have just lost my husband to PSP on the 23rd October this year. He had this disease for 4 1/2 years. The last year he could not speak, choked on...

Hi Everyone, I have just lost my husband to PSP on the 23rd October this year. H...

•10 years ago

A good time was had by all.

A couple of weeks ago I rang our local garden centre to book a Christmas meal with my 2 brothers and their wives. I said I wanted a table for 6 but only 5...

A couple of weeks ago I rang our local garden centre to book a Christmas meal wi...

•10 years ago

Need Advice

Ok so I took Aunt Bev into the emergency room Monday because she was having more trouble than usual they did can scan or MRI and chest exray, some flem but no...

Ok so I took Aunt Bev into the emergency room Monday because she was having mor...

•10 years ago

Sorry I left party early -problems

The PSP seems to be taking my wife down strange paths . She hates me being on th e telephone to anyone and will always try to call me and interrupt the call...

The PSP seems to be taking my wife down strange paths . She hates me being on th...

•10 years ago

Amusing day!

Went over to mum's yesterday to care for her and was shocked by how sleepy she was. Couldn't keep her eyes open. Was starting to really worry thinking...

Went over to mum's yesterday to care for her and was shocked by how sleepy she w...

•10 years ago

ONLINE PARTY

IT HAS GONE WELL SO FAR SOTHEH MUSJC ANF DANCING SHOULD START NOW! SO IS THE BLUEGRASS SUITABLE 4 DANCING 2 ?? LOL JILL

IT HAS GONE WELL SO FAR SOTHEH MUSJC ANF DANCING SHOULD START NOW! SO IS THE BLU...

•10 years ago

A" GAND T"TO START WITH FOR ME

I AM STARTING WITH A GAND T WITH LEMON AND ICE -- COLD I KNWO BTU WILL GO DOWN WELL AS I AM THIRSTY LOL JILL

I AM STARTING WITH A GAND T WITH LEMON AND ICE -- COLD I KNWO BTU WILL GO DOWN W...

•10 years ago

ONLINE PARTY

JUST ABOUT 2 START - -ANYONE THERE? LOL JILL

JUST ABOUT 2 START - -ANYONE THERE? LOL JILL

•10 years ago

What a day.......

It's only just gone 10.00am and I'm ready for bed!!! S woke up at about 6.00am for a "pee", said, "look there's a mouse just run across the floor"!!! Just...

It's only just gone 10.00am and I'm ready for bed!!! S woke up at about 6.00am ...

•10 years ago

UCSF

They finally called to Set Aunt Bevs appt. Now I just need to get her out of the hospital,

They finally called to Set Aunt Bevs appt. Now I just need to get her out of the...

•10 years ago

Was that really me

A visit to the doctors to sort out Brians prescription had me explaining that as the dietician wanted Brian to have 120ml of pro-cal a day one 250ml bottle...

A visit to the doctors to sort out Brians prescription had me explaining that as...

•10 years ago

Thank you

Thank you all for responding to the letter EDUCATING FDA sorry Aunt bev was put in the hopsital and so was I shes having to much trouble swollowing and me I...

Thank you all for responding to the letter EDUCATING FDA sorry Aunt bev was put ...

•10 years ago

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