Hi Everyone, I have just lost my husband to PSP on the 23rd October this year.
He had this disease for 4 1/2 years. The last year he could not speak, choked on food and drinks, he had a peg fitted, he could not walk and his muscles started to seize up, he then could not see very well or do anythinf for himself,
in fact my darling kept his sense of humor up until the last few weeks of his life as that is how we have always lived and I was adament that although this evil disease took away everything else from him, I had to make sure he had the best quality of life he could have living with it. It was a very quick and peaceful passing and though I feel a massive weight has lifted off my shoulders as I nursed him at home, I feel a massive void in my life as when he was diagnosed at first it was like psp came like a thief in the night, and it dared to finish the job this year.
All you lovely people caring for your loved ones I can only say , love and laugh even if you dont feel like it, and ride the waves whenever they hit you and they hit you hard. Many a time I felt like giving up and running away.
I am at peace now along with my husband as I took over the roll of nurse and carer, but I never let him forget I was his wife, he was at home with his family in his final days and we were able to hold his hand and cuddle him and make him feel safe on his passing and that for me was my job done, but his job was a 100 times worse than mine.
God Bless you all.