PSP Association
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Mucus build up in mouth

Mucus build up in mouth

Dear all

Mum ( Margaret) is in late stage PSP peg fed / catheter for last two years - on oxygen overnight she is building up mucus which kind of solidifies to the roof of mouth - we are using glycerine mouth swabs but it still builds- she is nil by mouth. Any ideas? dr been but just said keep swabbing! He then went in with tweezers and removed solid string about 4 inches long... Grateful for any suggestions

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with my father I just kept scrubbing his mouth with toothbrush. Grim! but that seemed the best we could do. I really needed to climb on his chest to get leverage. Not fun. Good luck,

Jill

CR

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What a wonderful picture. She has such a lovely face. ..like a painting,

Jill

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I just lost my mum to ALS (lou gehrig's disease), she we managed to keep her saliva production under control by using the side effect (mouth dryness) from Scopolamine - a patch made for seasickness.

All the best

K

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Sometimes a baby toothbrush can help. There are patches to aid the drying up of secretions and botox can also be used. Problem is they can dry up mouth too much. Which is very uncomfortable. Sorry not really much help. X ps beautiful photo ♡

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My dear people,Madeline has been going through this for 2 years ,I do it with teeezers also ,after she is sleeping, as that is the only time that her jaw muscles are relax enough to see into her mouth....what an illness...best to you all in this trying time,Rollie

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THAT'S MY PROBLEM , @ 1A M IN THE MORNING I WAKE UP CHOKING WITH THIS HORRIBLE SLIME. IT GOES ON FOR ABOUT 30 MINUTES.I HAVE TO RAISE MY HOSPITAL BED SO THAT I'M SITTING UP. AFTER I'VE SPIT IT OUT I HAVE WHAT I CALL A SPIT BUCKET,THEN I SUCK ON A VERY SMALL JELLY BEAN { SUGAR FREE} THAT HELPS ME TO SWALLOW HOPES THAT HELPS. GENA USA

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