Season's greetings one and all. I trust this festive season has seen bright moments amidst the ongoing pressures of caring.
I'm desperately hoping that someone out there can share their experiences with me.
Don has gone from a relatively peaceful sleeper to a night monster over the last year and I am at the end of my tether. Last night it really was a waste of time me going to bed as I was up to him several times an hour turning him and trying to get him to settle. He also has parasomnia and is forever waking me up to help him with whatever he happens to be dreaming about. While this aspect of his behaviour can, upon reflection, be hilarious in daylight hours, it is very trying at night!!! All of this has been going on for months now and I am so very tired. Sorry for the rant, but it does help to occasionally vent the spleen.
He is on Madopar (which has little obvious effect) and Seroquel to help with his hallucinations. Initially the Seroquel seemed to help his sleeping but the effects soon wore off. I put him back on 1.5 mgs of Clonazepam a night but although this helped a little with his sleeping, it virtually paralysed him during the daytime to the extent where he could not walk at all and his speech was badly affected. So, away went the Clonazepam. Really, I guess my question is: is there anybody out there who is experiencing similar difficulties with their loved one and who has found a drug to keep them asleep for a reasonable period overnight? I am not looking for miracles, just a few hours sleep occasionally.