Please accept my apologies for this morbid subject but I need the the help of this forum to give me advice advice, which is as follows:
My wonderful mother died approximately 4 months ago, where a pm was undertaken which they vaguely gave a cause of death as natural causes.
My mother was only 59 and had suffered from Parkinson's for only 7 years. When i look at the symptoms, msa and psp jump out at me, yet when she was alive, the hospital and specialists said this could be diagnosed upon death.
In the post Mortem, they took a number of samples of her brain and I asked the coroners office if they had analysed the part of the brain which would indicate psp or msa. In response to this the coroner said they had taken a number of samples but as this is a 'private matter', this would have to be funded by ourselves and we would have to go to a different department.
As you can imagine, this has left me a little bemused and I feel I have not got any closure as a result of this process. Based on the above, I have a number of questions that I hope you can help me with (I am also awaiting a response from our Parkinsons Doctor/Nurse):
Is Psp a genetic disease (research would suggest it is not)?
Is msa a genetic disease and what are the likelihood that a sibling can get it if they are genetically linked?
Does it have to be the deceased that has to be tested, or for example, can i bested in the form of a brain scan?
What are people's thoughts on getting genetically tested? My line of thought (just like my Mums), is to life life to the full and don't worry about what might be?
As usual, thank you to all the great people that exist on here, sufferers, carers or specialists!