Thanks for taking the time to read this. My father, 69, was diagnosed with CBD about a year ago. For some years before that he had various problems which the doctors put down to a stroke or series of mini-strokes. They now seem sure it's CBD.
It's advancing extremely rapidly. 18 months ago he could have a conversation normally and get around, although he had difficulty moving his left arm. It's now at the stage he can't speak except for whispering one word at a time, and even standing up takes him a couple of minutes. He seems to retain his ability to think, but can't communicate or really move his head, eyes, or facial features.
It's so hard getting information because the condition is so rare. Also, since I live far away I only see him a few times a year, and getting information from my mum is a nightmare (I think she tries not to worry anyone, but it has the reverse effect). What I really want is just to see if there is anyone else out there going through this and what the future holds. Thanks.