THE PHASE 2/3 TRIALS OF DAVUNETIDE FOR PSP ARE INDICATING WORTHWHILE IMPROVEMENT. IS THE DRUG LIKELY TO BE OF VALUE FOR CBD SUFFERERS?

[dezzie]

[peterjones]

i do not think anyone here can say what it will do we will have to wait and see and what side effects there are but like everyone else i will be hoping that it works ok before my time is up and a lot of brave people on here would feel the same but its a start isnt it which is better than no options at all ]] i hope it works for all of us mate good luck psp sufferer peter jones queensland australia

[marytea13 in reply to peterjones]

I agree wtih u Peter I believe there will be a statement in December but dauventide has to gain appproval from the Federal government for its use same as many countries. Marytea13in Perth W A

[bubbie in reply to marytea13]

my husband was in the study for psp. I think he got the drug because since he is off it he is getting worse. this is a terrible disease and im loosing my strength. he does not listen to my aid either.he yhinks he can do everything himself. im very down these last few days and dont know what to do. any suggestoins are welcome. bubbie

[jillannf6]

hi i am not sure about cbd

i hav ePSP but coudl nto take the davunetide tiral as i already use a nasal spray

so not goood new s for me personally

lolJill

[marytea13 in reply to jillannf6]

Jilian are u saying that becuase u use a nasal spray u cannot use this dauventide? i use a nsasal spray too for allergy as very limted to wahat I can use. Marytea13

[dorothy-thompson]

dorothy-thompson

My husband was on the drug trials at Haywards Heath in Sussex, he finished them in September this year but we have not had any follow-up yet, we expect it in January 2013.

[marytea13 in reply to dorothy-thompson]

Many thanks to people like your husband Dorothy who went in these trials & hope the outcomes for dauventide will make it all worth while Marytea13

[larches in reply to dorothy-thompson]

IIs this for C PD

[firo]

praying to God for this trial to lead to a new bright phase in PSP, when will the results be published, hope will be soon

[marytea13]

I understand that the Canadian drug company ?Allon will make a statment in December. Many of us with PSP will be looking for that statement.Marytea13

[jillannf6]

hi mary tea

yes i cannot use daviunetide in nasal spray form as i use a spray to prevent allergies to dust./ feathers and i tprevents me gettign more nasal polyps

lol Jill

[peterjones]

i use a nasal spray as well does this mean that you cannot use the drug davunetide jill i think the drug company would have thought of that mate after spending god knows how much money on research they would have a pill or something they would get their money back for sure im wondering when they will release the cost of this drug to us the psp sufferers when the dust settles i suppose but its great news as long as the other goverments in the world do not wait to long to approve it peter jones queensland australia

[jillannf6]

i t si soemhting to do with hwo the drug gets to the brain and a pill woujdl nto do it

i cannaot remember - spomeone post ed abaout it in th eearlier dahys of may/june

lol jill