Hello to everyone.My father takes Q10 in liquid form for about 2 and a half months.It's called Sanomit and i was able to find it in some german websites only.Our neurologist told us about it last summer.She explained that Q10 in pill form has no effect, it only goes to stomach and then dissolved, we want Q10 to cross the blood and the way to achieve that is to give Q10 in liquid form, which is Sanomit.This liquid was tested in a 6 week trial and the results were encouraging.She was reluctant about it's effectiveness, however she told us that we could try it if we wanted, as no side effects have been observed.We decided to give it a go and i can say that it helps.I am not talking about a huge difference so far, but for sure it's a significant one.My father still walks with assistance as he did before Sanomit. His walking is better now, he is more stable and he is able to make some steps on his own, he couldn't do this before.Also, he is much more light now, he is the same kilos, but it's easier to lift him up or help him walk.Last days, we have noticed that his voice has become a little bit more loud and clearer.The dosage is 2 drops per kilo (my father is 75 kilos, so we use 150 drops per day).It costs about 100 euro per bottle and we need 2 bottles for a month.I do believe it's worthwhile.
Sanomit: Hello to everyone.My father takes Q... - PSP Association
Sanomit
I think it is great that things are starting to come to light in the way of various treatments. Although we know that there is as yet no cure , it is good to know there are thiings than can make life more bearable for suffrers and possibly lengthen their mobility. Unfortunately as mum is in a nursing home they quite rightly have to do everythiing by the book so any thing extra, even vitamins and supplements have to be run past the GP first. It helps if there is research to back things up. But I am still waiting to hear if the GP will approve the use of flaxseed in mum's diet to help regulate her bowels rather than her having senna and fybogel which have been reported to play havoc with pwPSP bowels ( I don't know about CBD). So it will be good when GPs are on board with these trials and treatments and understand that we are after relieving symtoms in the short term. Hope your Dad continues to thrive and do let us know how things go. Dianne
I dont know about Q10 I've tried the capsules but find I feel awful after taking them perhaps they do help me play bridge that's all I take them for. Marytea13
hi mary tea 13 well do you play bridge better after taking Q10 NOW YOU KNOW WHAT YOUR MOTHER SAID TO YOU IF IT TASTES TERRIBLE THEN ITS BOUND TO DO YOU GOOD I MYSELF I TAKE COCONUT OIL ITS SUPPOSED TO DO WEIRD AND WONDERFUL THINGS
FOR YOU I EXPECT THERE ARE LOTS OF DIFFERENT THINGS OUT THERE THAT WE COULD TRY I THINK ITS IN THE MIND IF YOU THINK ITS DOING YOU GOOD THEN IT IS
PETER JONES PSP SUFFERER QUEENSLAND AUSTRALIA LET US HOPE ANYWAY
google "Maria Stamelou". She is actuelly in U.K.
Hi, is Q10 for the PSP?!!! please let me know, my dad has it .... we are hopeless...
Hi, zuzanka.My dad had tried Q10 in pill form, but we saw no difference.Now, he takes Q10 in the liquid form that i wrote above (Sanomit) and we have seen some improvement.Best wishes to you and your dad.
Hi, John-z,
I write from Italy. My mum was diagnostic on 2010.
I'd like to know if your father takes his 150 drops of Sanomit all together or not and when?
I want to try with my mother and I hope to have some benefit.
Please if you can, give me a reply asap.
Best best wishes to all of you
Hello again John,
I would like to know too, how your dad is taking it and when. I found Sanomit on Polish website and i can order it! i had no idea that this product is in my country so i was looking elsewhere....
Many thanks
Ania
Hi, Ania, that's very good news!I only found Sanomit in Germany, i didn't know it exists in other countries too!My dad takes 150 drops daily.We split the 150 drops in 3 doses, giving 50 drops in each dose.We give the 3 doses morning, noon and afternoon.First of all you have to weigh your dad, you need 2 drops for every single kilo, so if his weight is for example, 70 kilos, you need 140 drops every day.Best wishes to you and your family, John.
John, that is very helpful!!! i do appreciate your help very much! 
Did you buy the 30ml or 100 ml bottles??
all the best to you and your dad. is he getting better and better?
I just very hope so.
thanks a lot
Ania
Thanks for your kind words, Ania! I buy the 100 ml bottle,we need about two of them for a month.I can't say that my dad is getting better and better, but certainly these drops have helped him since he started taking them.He walks better, he is more stable and his voice seems a little clearer and stronger.He doesn't take other drugs, so i do believe it's a significant difference, any improvement in this so difficult disease is very important.
That is so true!!! if this helps just a little bit , I am happy. I am trying to convince my mum now to try it. Hope it will work for my dad too.
All the best!
Ania
So tired!
Please God bring him home to you.
Dad’s 8 year PSP journey at its end 
the time has come - 3 years from diagnosis
Trouble with expectoration.... anyone advice on a cough assist?
