PSP takes another victim

It is with great sadness that I have to report the death of my beloved mother Sheila Baker from PSP. Her condition followed the usual cycle of late diagnosis then a short but spirited battle against ultimately overwhelming odds.

I would like to thank everyone at the PSP Association who supported and advised my father Dennis in caring for Mum and also the Wisdom Hospice in Rochester, Kent for ensuring that Mum died in peace and with dignity.

I would urge everyone reading this to help the PSP Association and their local hospice both with fund-raising and publicity.

To anyone dealing with PSP and in whatever way - Good Luck and stay brave.

Christopher Baker

17 Replies

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  • HI CHRSTOPHER

    SO SORRY TO HER OF= YOUR MOTHER'S PASSING

    WHAT AGE WAS SHE?

    I HAVE PSP BUT HOPEFULLY THE SLOW TYPE

    HOWEVER IT CANNOT BE EASY FOR u At aLL

    I AM HERE AS IS EVEYROEN ON THE SI TE FOR YOU

    LOL jill

  • Hello Jill - thanks for the posting. She was 84. We think, with hindsight, that the PSP kicked in about 5 years ago but nothing much happened for a couple of years, then it just marched on relentlessly and accelerated over the last 3 months or so.

    It's hard to know if any drugs helped, as you don't know how it would be if she had not taken them, but she took Q10 and there were no side effects so worth a try.

    Chris

  • It is heartbreaking to hear of the many sufferers diagnosed with psp a short time before the symptoms accelerate, but I just wanted to reassure you that my husband Tom has had psp symptoms since 2003, firstly diagnosed with parkinsons, but today he is not very different to when he was diagnosed with psp in early 2007. Just started botox injections to help with eye opening and hyoscine patches to control dribbling, the falls are reduced by lots of grab rails around the house, use of zimmer frame or wheeled walker, daily exercise on a treadmill, he's doing okay and intends to keep going for years! Hope there are other sufferers like you and Tom and Peter Jones. Sorry of course for the families and suffers who do not have this extra time to come to terms with the illness.

    sincerely, Ann

  • Dear Chris,

    My deepest sympathy to you and your family at this sad time. I hope memories of happier times will comfort you in the weeks ahead.

    Much love

    Kathy x

  • Best wishes, she is at peace now. x

  • hi christopher

    i take coq10 and am not sure if i tdoe sany good

    ...lol jIll

    hug sto you

    x

  • Who knows if it helps or not, but I guess that you have to try everything and anything.

  • Best wishes to you and your family Christopher

    Sarah

  • Please accept sincere sympathy from both my husband and I. As others have said, at least your mom is out of the misery now that PSP creates. I send best wishes to you and your family and friends. Try to think of the happier times spent with your mom when she was well.

    Take care.................SuzieQ

  • Sorry for your loss richteab. you keep thinking of all the happy times and the sadness will fade a little. All of us will have to deal with this at some time I just hope we will all be able to cope? take care .

  • sorry to hear of your loss. my husband has psp. for 5 yrs. now and this month i see a big change in his condition. his walking is bad and his listening has gotten mch worse. what a terrible disease. I hope your mom didnt suffer too much. I think the caregiver suffers worse. Im having a very hard time now. take care and remember the good times. bubbie

  • Richteab,

    It's so hard to hear of the passing of another loved one, but I hope you find peace in the love and care given to your mother. Bless you and your family.

  • Richteab,

    My sincerest condolences to you and your family. Every time someone loses a loved on this list it breaks my heart. You and your family are in my thoughts and prayers. Remember how good you all were to your Mom and know she passed knowing how much she was love.

    Hugs, thoughts & prayers

    DeeDee

  • Richteab,

    My sincere condolescences to you and your family for your sad loss. As others have said, at least your mother is at rest away from the awful disease psp.

    Take care and time to come to terms with your loss.

    Love from

    Peter3.

  • Dear Christopher,

    My husband Chris died in June of this year. My thoughts and prayers are with you and your family. Let time do it's healing- all my friends tell me I have to allow myself the time to recover and keep telling me not to be so impatient with myself. As every one else has said it is very good therapy to remember all the good times together.Be easy on yourselves.

    with heartfelt sympathy

    Teena2

  • Many thanks to everyone who has posted replies here; it's really heartening to know that there are still people who care about their fellow humans.

    Chris

  • My condolences to you, Christopher. I am so sorry for your loss. You have some tough days ahead but take comfort that those tough days are over for your mom. She is at peace. I know she is proud of you and thankful for the love and the care you've showed her through this journey. We all have done the best we can do with what was handed to us so be good to yourself! You will always miss her but I promise it will get easier. Once time passes you'll come to notice that she really isn't very far away.

    Thoughts and prayers coming your way. . . . .

    Danielle

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