Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms?

Is there any actual medical test related information about PSP that explains the differences between "slow" and "fast" PSP symptoms? While I've seen these terms written in questions & answers on this web site, I don't know where to look to find more information.

Thanks, Dennis

8 Replies

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  • hi dennis

    i think i ha ve the slow sort of PSP as i am still here standign uprigt most of the item snce dxd dec 2010

    you will need ot ask your neuro and he mahy nto want to answer atall

    it is a diffiuclt illnesss to plot - i htink i am sitll at stage

    11 but really others are ina better position to tell

    lol JIll

    :-)

  • Jill, thanks. You are a real inspiration for others with PSP and their care givers Here in the U.S. I can't locate any information on fast or slow progression PSP. Actually, there seems to be more information and support groups in the U.K. Since you mentioned stage 11, how do you measure stages of PSP?

    Keep your chin up. Dennis

  • Hi Dennis

    I am also at a loss to find out what stage / level my mum is at no one seems to want to commit to giving information. The only guidance I got really was from socila worker who said it progresses very fast! May be someone out there has the answers we need.

  • I understand that due to the limited medical research on PSP there is less information available. There also seems to be a big difference in how soon each symptom first appears and how fast they progress. Here in the U.S. I haven't been able to find any information on fast or slow progression. Actually, there seems to be more information and support groups in the U.K.

    Dennis

  • Hi Dennis

    We do have the advantage of using this system and you can gain knowledge / advice from other people who have experienced the problems that we are likely to face. I find it very helpful and for my mum I am due to be contacted by a PSP nurse, so hopefully she will be able to shed more light on things. Will pass on anything relevant.

  • Hello,

    I live in the US (Maryland) and there is a curepsp.org website that has alot of info. Go to the site and research because I believe there is something on the different stages of PSP. Good Luck and God Bless to all.

    Ileen

  • Thanks for your reply. I am familiar with the curepsp web site but may have missed some of the information. I'll keep searching.

    Dennis

  • hi all

    i go thte idea of slwo PSP from an american on ahtis sit enad googled it

    the phases are put otu by the Psp uk assoc but are a guidelien

    happy weekend 2 you all

    lol Jill

    :-)

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