My mum has been in and out of hospital quite a bit recently. On Friday she was admitted with a chesty cough but she had had a cold and so far (today is Monday) no one has told us whether she has a normal chest infection or aspiration pneumonia. They have been treating her with IV antibiotics and have her on a fluid drip but until this afternoon she has been nil per mouth and nil by PEG (this was fitted a few months ago).
I came from the hospital this afternoon very upset and now I am just angry! She was so thirsty that her mouth is red and inflamed and the skin from her tongue and inside cheeks is peeling off in bloody sheaths. I say bloody because her mouth was so dry it was bleeding. I can't believe that a dog would be treated this way and I feel completely powerless.
I understand that she is nil per mouth because her swallowing has not been assessed and they are erring on the side of caution, but how long must she wait to be assessed! She has a soft, pureed diet at home and thickened fluids and manages fine. Does anyone know of any other reason they may think it a good idea to starve a very skinny woman who is already suffering beyond measure?
At least they are now PEG feeding her but when I was sponging her peeling lips with water, she kept trying to grab the cup off me and drink the water. She was biting down on the sponge. She cannot talk and is completely helpless. I feel that we should have some say on how she is treated in hospital but all we see are nurses who can give us no information.
Does anyone have any advice? Are we able to make them give her sips of thickened fluid? I suppose they think they are doing the best thing to keep her safe but in the face of PSP should this be the goal? Surely her comfort counts for something?!
If only I knew she would be home soon it would be ok but she could be in there for weeks.