Hi everybody, it's been months since I posted here. That's partly because I've found it difficult to be here too much, and partly because I'm not sure that I've had anything to say about PSP that hasn't been said.
But, that's not the point is it? It's ok, here, to say whatever is in our heads. We're all affected by PSP, we're all dealing with it, we're all facing the impact it's having on our lives. None of us wanted or planned to have this intruder, this thief, in our world.
My mum's PSP journey is over, but we're still living with it. Quite literally; I've been doing a wee bit of volunteering for the PSPA, so there are boxes of PSP stuff in the house- information packs, print outs, diary dates. Soon, I'll be taking over hosting the NI display stands and material- my family are beginning to wonder if there'll be room for them in the house Next week, I'm going to be giving a talk at a training event for nurses- the children can almost recite it by now!
As you'd expect, I have good days and bad days. Days when I get blindsided by a tv programme or a shop. Days when I'm fine. My mum died on 5 July: 5 August and 5 September were rough; but I didn't notice 5 October. Somewhere, I stopped counting the weeks. I didn't expect that.
Some links to things I've written on my personal blog- a day that went surprisingly well, and a really rubbish day. We all have them.
My thoughts are with you all, even when I'm too much of a wimp to be here.