My darling Husband is free of the illness now

My darling slipped away peacefully last Friday, he became very ill last Wednesday and although he had hoped to stay at home he agreed to go to the Hospice, it was the best decision as they made him comfortable and pain free , we were all there at the end and he chose to go when I sat on one side of him , his son on the other and the grandchildren were in the room .

He was so brave and never complained, I cannot think of life without him . I have donated his brain tissue and spinal cord for research into this terrible disease and take comfort from the thought that he may contribute to a cure being found so that others may not have to suffer as he did.

The support I have had from joining the PSP Association has helped enormously, I thank you all, God Bless.

20 Replies

  • Gwendolyn,

    I'm so sorry to see this. Please know that we're all still here for you- I've got great support from here in the months since my mum died.

    Hugs, thoughts and prayers going your way.

    Fiona x

  • So so sorry to hear your sad news Gwendolyn. Our thoughts and prayers are with you. I hope you stay with us all here so we can still support you.

    I an so glad Fiona stayed with us too. My Mum is gradually getting worse and I know the inevitable is going to happen at such stage. Your experiences and from others like Fiona have been invaluable to me and helped me cope so much better with PSP life.

    I am so so sorry...big hug! x

  • I am so sorry to read your sad news thoughts and prayers are with you and your family during this time. If there is anything we at the PSPA can do to help, do please get in touch.


  • Dear Gwendolyn

    My deepest sympathy to you on the loss of your husband. Luigi has now been dead four years come January and I still miss him terribly. Yesterday would have been our 46th Wedding anniversary, a very sad day indeed for me. My one consolation is in the fact that he is at peace now and suffers no longer. Life had lost it's meaning for him. We had planned so many things for our retirement but it wasn't to be.

    My daughter recently after many difficulties had a little boy and once again I feel that life still holds some meaning for me.

    I hope you too will soon find some inner peace in order help fill the gap.

    Warm regards


  • Dear Gwendolyn,

    I am so sorry to read of your news. What a comfort for you all that you were with your husband at the end. My thoughts and prayers are with you.


  • Dear Gwendolyn

    So sorry to hear of your loss. My love and best wishes to you and your family. God Bless.

    SuzieQ xx

  • Gwendolyn

    I just echo the thought of all those that have sent their condolences to you and family, God Bless.

    Kay x

  • dear gwendolyn

    so sorrrytt o hear your sad news - yoru husbad is at peace but will leave a large gap with all the caring suddenly stopping

    But plz stay on the site - we need u

    Great too tha h is brain and spinal cord r going yo research - ihave donated mine for when the itime comes after being prompted on the site that it needed doing

    take care

    love jill

  • Gwendolyn

    I am very sorry for your loss. Your husband is in a better place now, free of the confines of this incidious disease. May you take comfort in that as well as the memories you have ...

    All the best,

    MJ and Mark

  • Dear Gwendolyn

    I was so sorry to hear the sad news about Ken. My thoughts are with you and your family.

    Love Lorraine

  • Dear Gwendolyn

    I am so sorry to hear about your husband. It is good that you were all there with him and together for each other at the end, I know this was a big relief for me with my dad. Your wonderful memories of your husband will always be there. Take care of yourself Gwendolyn

    Lesley x

  • Dear Gwendolyn,

    My sincere sympathy to you and your family at the sad loss of your husband. At least you have the comfort of being with him for the final stage of this awful journey. My thoughts and prayers are with you.


  • Dear Gwendoline

    My thoughts and prayers are with you at this sad time. My prayers and thoughts are with you and your family. Your dear husband is now at peace. I will send love and healing to you in my prayrs tonight. God Bless. I know what you are going through.

    Ray has been gone for 18 months now.

    Love and hugs and GodBless.


  • Dear Gwendoline, our thoughts are with you and your family at this sad time,love from Elli and family xx

  • Dear Gwendoline. Your story is so similar to when my Dad passed away last year. My Mum, my sister, myself were with him, but he waited til his grandchildren were there too. It was peaceful and he passed with great dignity as it sounds as though your husband did. It is very brave you have donated his brain tissue and spinal cord as you say this will help the PSP Association enormously. Well done. You have a loving family who will support you through this. There is nothing anyone can say to make your loss easier, but by all the replies I've read you have great support, which must be such comfort to you. Best wishes, Nicola T

  • Dear Gwendolyn

    Really sorry to hear the sad news but how lovely that his family were there with him at the end. That must have been lovely for him.

    I lost my husband in April and like your husband, he had had the best of care at a Neurological Care Centre/Hospice in Nottinghamshire and in his last hours I was even told 'bring your little dog' with you and put her on his bed. So, there she lay quietly for hours, as Richard slowly and peacefully slipped into the next world - with his hand still on her back.

    Richard also donated his brain and spinal cord. I think it's a such admirable and unselfish thing to do.

    Thinking of you all at this very sad time.


    Maggie x

  • Dear Gwendolyn,

    Sending great big cyber hugs to you and all your family at this time xxx

    Much love


  • So very sorry for your loss, Gwendolyn. Your husband must have been a wonderful man.

    Thinking of you.

    Fran and family x

  • Gwendolyn, Please accept my sincere condolences. May you take comfort in knowing that your husband is now free of this terrible disease. Also, the knowledge that your generous donation will have a huge part in helping us find a way to beat this disease.

    Take Care,


  • Gwendolyn,

    I am so sorry to hear about your loss. You are an inspiration to all of us with the way you have had the strength to donate his spinal cord and brain tissue for research.

    My thoughts are with you & my support will always be.

    Hannah xx

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