hi every one i am shirley i care for mum who is 68 and has psp .i first noticed changes in my mum 3 years ago but she still worked fulltime so we thought was just getting to much for her and said why dont you cut your hours but mum said no a year and a half ago my mum started falling by this time she was part time at work and she started falling at work to and was even sent home sometimes . she was nt as chatty either and sometimes when i phoned she would take her time answering and i would say what kept you and she would say i was sleeping which was a thing my mum never done . she complanied of sore back so took her to docs turned out she had bad urine infection so i put it down to that make ing her feel mudled the docotor refered her to stroke clinic but nothing showed up the doctor thier said she might have dementia so after ther 3rd visit at memery clinic she passed all the tests on the 3rd visit was a different doctor who asked if my mum had any detailed scans which i said no he refered her to falls clinic and the doc there said she would like mum to see a movement disorder specialist and arranged for a mri scan and a specta scan ( if thats how spell it ) we went to see specialist in august this year and thats when we were told the awfull news the doctor said life expectancy is 3 to 6 years but mum has prob had it for 3 . i can beleive how fast my mum is changing it is so sad to watch as my mum was allways so active now she sleeps alot and just lays in bed her right arm is really sore when she moves in and some days struggles to get her legs working just 2 weeks ago she said her left arm was sore to so now i am helping mum with her food i am waiting on aphsio coming out to see if will help but been told is part of comdition i hate seeing my mum in pain and so help less . my older brother lived with my mum but he passed away suddenly june this year so me my husband and " kids have moved in with mum as she cant be alone i have home helps who come in and help get mum washed and dressed but they are sturgling beacuse my mums mobility is so poor so until teh bathroom is adapetd she will just have to ger washed down the ot coming out this thursday so hoping to get a wet room so its easier for mum i fell as if i am hittig my head off a bick wall sometimes trying to get things sorted and people say shirley your taking on alot and i say well youonly get one mum and i want to do the best by her i could go one for ever typing but i will end it heer for now hope this blog makes sense as i fell as if am rambling ha ha xx take care every one xx
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