I have just taken my sister into hospital to have a PEG tube fitted and read through the PSP information pack. The section marked "going into hospital" I filled in all the details in this section and gave to the nursing staff. Expecting to have them look down their noses and say " we know what we are doing". The exact opposite was their response. They were pleased and were reading my answers to various points in the questionaire and could not have been more helpful. So if anyone out there is looking for help join the PSP Association, its free, the information pack invaluable. It answers a lot of your concerns if not points you where to get help. Fellow bloggers are right . You have to shout long and hard for help (something I am not very good at doing - but learning fast). I know that I am in for tough time ahead as my sister has gone down hill quite rapidly over the last month hence the PEG tube being fitted. Moving her has become a real problem. I think I shall have to have a hoist put in.
Hang in there friends