My Mum was diagnosed with PSP in Feb this year after a few years of falling backwards! Mum fell down the stairs and broke her back and multiple ribs she was eventually referred to a Neurologist as they had noticed she had the eye movement where she doesn't have control over her up and down movements and it was then when they diagnosed PSP. Mum has to walk with a zima frame to the toliet etc and we use a wheelchair when going out. So does anyone have any ideas why she gets so tired when going out to the shops in her wheelchair being pushed by us, Mum is tired for the rest of the day and the following day, with no energy at all, Mum sits in her chair all day mainly as it is to tiring for her to go anywhere. Before this horrible illness my Mum was very active, happy and chatty person now she seems to have deteriated so much and has gone quite and she says her voice sounds different when she talks, we keep reassuring her that she sounds the same and not to worry and all we want to do is help her have as normal as possible life.
I just want my Mum back X I just want her to be happy, I am so frightened about her future and what will happen to her and how much she will actually know, we don't know what stage Mum is at with PSP. I have read a lot of information on the PSP website and I am so worried about my Mum. Mum lives with Dad and he isn't coping either but doesn't say! Mum goes to a day centre 1 day a week but only goes when she feels like it which isn't much as she is so tired the day after, but it gives Dad a break! I go every day and shower her and clean the house to help out, but just would like some advice how we can make her life happier and easier for her. Please can anyone give me any advice?