Anyone from NZ: Hi Is there anyone from New... - PSP Association

PSP Association

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Anyone from NZ

RobTheKiwi profile image
7 Replies

Hi

Is there anyone from New Zealand on the site. I live in Auckland and my wife has PSP.

Cheers

Rob

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RobTheKiwi profile image
RobTheKiwi
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7 Replies
LindanTerry profile image
LindanTerry

Hi Rob,my husband has PSP,although we dont live NZ our daughter does,and we are visiting end of Oct,she lives on the South island.How long has your wife been diagnosed! Hope you do find someone on the site in NZ,but you can always chat to us.As more people join you never know where they hail from. Take care Linda

RobTheKiwi profile image
RobTheKiwi

Hi Lindan

Kathy was diagnosed May 2010, we were "luckier" than some as the Neurologist picked it up almost first visit. Her loss of mobility and speech issues have developed quite quickly. The speech is major for her as she is a Lecturer at one of the University's here in Auckland.

Hope you enjoy your visit and glad to see you are coming after all the Rugby madness is over.

Cheers

Rob

LindanTerry profile image
LindanTerry

Hi Rob,

We have been watching the Rugby on Tv we actually live in the town of Rugby.Yes we too feel lucky in respect we had a quick diagnosis and Terrys PSP is the slow one ,so we are still able to do most things,although his speech is going a bit now and his balance isnt good and he gets very tired easily.We shall have a wonderful time inNZ our 3rd visit.You and Kathy take care all the best.

Linda x

jillannf6 profile image
jillannf6

hi rob

i do not live in Nz but am a big rugbyh league fan (Saints in

England)

i am sorry about your wifei Kathy - i used to lecture but luckily was not affected by the pSP until 5 yearw sago- diagnoseod aged 64 last year

taie care

luv jill

RobTheKiwi profile image
RobTheKiwi in reply to jillannf6

Hi Jill

Thank you for your kind words.

We follow the warriors in the Oz league.

Cheers

Rob

KateNZ profile image
KateNZ

Hi there Rob,

I too live in Auckland, NZ and have a family member with probable PSP diagnosed mid 2010.

Kind regards,

Kate

RobTheKiwi profile image
RobTheKiwi

Hi Kate

Thank you for replying. How is it going with your relative?

Kathy is slowing down and the fatigue is getting worse.

Cheers

Rob

PS We are in Onehunga

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