My PSP Family: Hi All As I say to... - PSP Association

PSP Association

9,234 members11,337 posts

My PSP Family

jennifer-nind profile image
4 Replies

Hi All

As I say to people, I have my family, my spiritual family at church, which is growing and my PSP Family, which is growing week by week with my involvement with the support group in Brentwood and who knows where it may go.

It is soooo lovely to have such a growing family and I hope to be able to increase my PSP family over the coming weeks and months with such lovely people touched by such a wretched illness and hope to make friends and support as manyh people as I can.

Love and best wishes to you all,

Jen

Written by
jennifer-nind profile image
jennifer-nind
To view profiles and participate in discussions please or .
4 Replies
LesleyB profile image
LesleyB

Hi Jen

Spot on. Although my dad has passed away from this terrible condition I find the continued support of the PSP family a source of great strength as I try to find my way without him. Seeing what you and others are doing with the support groups is brilliant and will ensure people in a more localised community don't feel as isolated. This is so important when everyone you seem to talk to generally have never heard of the condition and it can make you feel very alone with it.

Well done with the Brentwood Support Group. Keep up the good work

Lesley x

jillannf6 profile image
jillannf6

hi jen

yes it wil b good to have a support grouyp nearer 2 where i ive too = in warrington i think

keep up our spiriits

love jill

PSPA_DebbieB profile image
PSPA_DebbieBPartnerPSPA

Hi Jen, it was so lovely to finally get to meet you at the Symposium - putting a face to the voice and name always makes such a difference. You are doing such a fab job...Best wishes, Debbie

jennifer-nind profile image
jennifer-nind

Thank you all for your comments and support, although I do find it difficult at times with the support group etc., it is part of my healing and if I can help at least one person, or one family I feel my experience with PSP and MND have been worthwhile, - my late mother in law died from MND in Septembe 1994 for those who dont know, MND is a 'cousin' for want of a better word, to PSP.

Love to all

Jen

You may also like...

Multiple Family Members with PSP

Does anyone else have multiple family members with PSP? My grandfather was diagnosed with...

PSP - a rare disease in the family

for a while :) All best wishes to you all, and many many thanks for all the support and...

Impact of family death on PSP

diagnosed with PSP last Nov (confirmed) and we have been providing care within the family for last...

Cure PSP Family Conference in Rochester

conference on PSP/CBD/MSA at the end of June? I am seriously considering it and would love to meet...

The story behind my daughters Marathon for PSP.

When dad was alive we attended our local PSP Support Group which was held at Shrewsbury, in those...