2 positive 12 weeks apart and now now negative antibodies for APS?

[pinkyandperky]

My antiphospolipid anti bodies were positive last June and last November. When i went to Guys' In February they diagnosed me as having obstetric APS they took some blood and now my aps antibodies are now negative. What does this mean?

[MaryF Administrator]

Hi, make sure you stick with your specialist whether pregnant or not, and keep a record of symptoms, testing can go in and out of positive, a lot of us have been there with that, including myself. MaryF

[pinkyandperky in reply to MaryF]

Hi Mary, thank you for your reply and reassurance I was thought it meant i no longer had APS and only just got diagnosed in February after being tired and achy for years and lots of pregnancy complications. x

[pinkyandperky in reply to pinkyandperky]

Hi I had Telephone consult from St Thomas' today. they feel I do not have APS as the the test results they took have come back negative. they said my clinical history was just a coincidence and that my previous positive anticardiolipin results were not positive enough to be considered. I have now been discharged. I don't know what to feel.

[GinaD]

I was strongly positive for years. Years! Then I went gluten free and now all my blood factors are negative. Yet I stay on warfarin, ( now on a very low dose.) Thise numbers go up and down due to so many factors, like... That man who sneezed in the grocery aisle ahead of you? You never came down with his cold because your immune system was right on it! And some of those immune factor numbers went up, and then back down.

[veganworld in reply to GinaD]

hi

That is so interesting. I went Gluten free a couple of years ago and my health has improved and I don't have that sludgy achy feeling anymore. Much more energy. When I next see the rheumatologist it will be interesting to see my blood results.

Kaz