White lines on nails

[Sevenstar]

Yet another question, I'm so sorry , my head is buzzing with questions and I can't keep calling my GP , you guys know so much !

Should I be worried about these white lines on one hand only ?

[designer16]

I have had them for about 4 years. From what I have read they say it’s from our thyroid, but mine always test fine. I recently started changing my diet. I fast 12-16 hrs (sleeping is most of that time). Then I make a smoothie with berries, collagen, spinach, emu oil. The new nails growing in are much healthier & less lines. Check out Dr. Terry Wahls website she talks about diet & autoimmune diseases.

Designer 16

[Sevenstar in reply to designer16]

Thank you designer16 that's very helpful!

[Greenmil3]

Not sure if this helps but Professor D’Cruz loomed for white lines in my nail beds when I was originally diagnosed as he said was clots

[Sevenstar in reply to Greenmil3]

Thanks Greenmil3. I'm not sure but I thought the lines in nails that are clot related or splinter lines are brown or reddish brown ? Thx

[Lure2]

Hi,

I have read a little about your previous symtoms. Also on Lung Foundation site I saw. I wonder who diagnosed you with APS? Did that Doctor tell you to use any bloodthinners for your symptoms. Are you still breathless from time to time?

You need a Specialist of autoimmun illnesses who works with people like us at a daily basis.

Kerstin in Stockholm

[Sevenstar in reply to Lure2]

Hi Kerstin , thanks for your reply, yes I was diagnosed by a Consultant Rheumatologist after testing positive for primary APS with 2 out of the 3 blood tests . As I have so far had no clots TIA s or miscarriages I am being treated with Clopidogrel! Regarding the breathlessness which is only occasional, I was diagnosed with mild Bronchiectasis 10 years ago but now recent a CT now refutes this and has put it down to mild scarring ( I was asthmatic as a child ) and also

to reflux !

So many things are intertwined aren't they , but also so many random symptoms!

Thx 🙏

[Lure2]

I think you should see a Specialist again! When did you last see a Specialist for your APS?

Do you only take Clopidogrel? It is difficult to know if you have got clots or not. We may have a lot of PEs as to microclots and they are difficult to show on a Scan of any sort actually. So very few Doctors understand our illness. We have to fight to get the correct treatment. If you get the correct Anticoagulation you may feel much better.

[Sevenstar in reply to Lure2]

Thanks Lure2 , well I last saw him in March and he did the full bloods plus some of the more unusual, plus a brain and spine MRI , yes he thought Clopidogrel was sufficient for now . Am seeing again in November so will ask if I need further thinning!

Thank you again

[Lure2 in reply to Sevenstar]

Good. Hope he is a Specialist.

[Lure2 in reply to Lure2]

What did the brain- and spine MRI show? Yes, the splinter lines are usually dark coloured not white. It could be caused by perhaps a lack of some vitamine like Magnesium. I think I saw that somewhere.

You can test positive to one or two or three different antibodies and be diagnosed with APS. More likely APS for sure if you are tripplepositive of course.

You can only know if you are correct anticoagulated when you get rid of the symptoms that are typical for this illness. Clots do not always show up for example.

Prof Hughes often made a trial of LMW Heparin for a couple of weeks to see if the symptoms eased. If they did he let the patient have Warfarin or LMW Heparin. We usually feel better with Clopidogrel or Aspirin but sometimes we need a real anticoagulation drug like Warfarin or LMW Heparin to get free from clots and thromboses.

[Sevenstar in reply to Lure2]

Thanks for the reply Lure2, brain and spine were all clear , no lesions , clots etc ! Thank you for magnesium suggestion will give it a go 😊

[Lure2 in reply to Sevenstar]

Good that they were clear but all the same we may have a lot of tiny clots and they do not always show up on a Scan. Listen to your body and learn as much as you can about APS and its different symptoms.

Please, do not take my words for granted as I am not a Doctor. I have just read it recently somewhere that those white lines on nails could be lack om Magnesium. Better see for yourself.

[Nesting in reply to Sevenstar]

Was diagnosed with APS March this year after MRI scan and two blood tests . Had left sided tinnitus but scan showed TIA .So far am still on clopidogrel and he’s put me on statins as well but have to see consultant again 6 months time .But so far feeling not to bad

[Stereolover]

I remember Prof D’Cruz asking if he could check my fingernails. I thought it was an unusual thing but he soon found what he was looking for. I had a couple of “splinters” which he said was a classic sign of Hughes Syndrome. That was in 2007 and I’ve taken Clopidogrel ever since. I’ve never had the white marks that show on your nails so I think you should ask a doc who knows about APS.

Best wishes 💜