Heat!

[Sevenstar]

Hi there , does anyone feel worse in hot weather, do you think it makes sticky blood worse ? I'm feeling absolutely wiped out !

Thanks guys

[MaryF Administrator]

Hi, I do feel bad with temperature changes, so in the winter, I accommodate this by never allowing myself to get cold, thermals etc and always wearing a hat outside and in the Summer, or Spring, making sure I drink enough water, spaced out regularly, as there is more clotting likely if dehydrated let alone the tiredness, another trick of mine in hot weather is to wear a damp, (wrung out cotton baseball hat or similar) to avoid the overheating that can happen. MaryF

[Sevenstar in reply to MaryF]

Thanks MaryF yes today was so hot I was flapping around all over the place , now got a horrible headache like a hangover but without the fun 🥴

[HollyHeski Administrator]

I dehydrate really quickly when its warm, which will thicken my blood quickly. If I stay hydrated, then my blood goes quite thin in the summer months.

Winter cold makes me clot quicker.

[Jumper99 in reply to HollyHeski]

I go the other way! Very odd, but the last two summers and in previous hot summers I’ve had to take increased amounts of warfarin and then had to decrease again in September. I’m quite stable over the winter. I do stay hydrated But have always wondered if there was more vitamin K in our veggies during the summer. The food might be fresher as it’s often sourced more locally in the summer.

[Fra22-57]

I do yes.get such pain build up when overheat and have to fan myself and remove some clothing.I ache so much more and at times feel so ill so rest it out and do what I can when feel recovered.Rain today so should be little cooler

[Ageingfemale]

Hubby and I have a coffee sat outside, once the Carers have got him up, and then back indoors for the rest of the day with fans on. Boring but better than feeling so poorly!!

[GinaD]

My diagnosising hematologist told me to "drink by the clock" not by thirst, as blood has already begun to thicken by the time you get thirsty. Staying consistent is best

. And remember hydration does not equal sodas and other high sugar drings. hydration equals water!

[Sevenstar in reply to GinaD]

Thanks GinaD yes only ever water , didn't know that blood got thicker in the warm , it's no fun is it , cold is a bad as hot 🥵, seem to dehydrate very easily now even with gallons of water ! Thx

[TwoH]

Thank you for asking this question. I didn’t realize that the heat may be an issue. I have SLE too so I thought it was always the problem. Although I hear the guidance regarding hydration I guess it just didn’t really penetrate my brain! I’m going to do better - I am exhausted and in a lot of pain which is how I spend my summer.

[judes]

As I’ve got older I find the heat more difficult to cope with, don’t even sunbathe all day now. I’ve had two lots of skin cancer, prob due to putting olive oil on as a teenager!

I can’t remember where I read or watched it but research has shown a glass of milk rehydrates you more than water. Won’t help me as really don’t like milk!

J

[Sevenstar in reply to judes]

Thanks Judes , yes same here , can't decide which makes me more uncomfortable, the heat or the cold! Not keen on milk either, someone suggested coconut water as it helps with replacing electrolytes , seems to help . Thx

[sydb]

I love the hot weather, psychologically, but it makes me feel awful, physically. In addition to APS, I also have POTS and it makes my orthostatic issues worse.

[Sevenstar in reply to sydb]

I feel your pain, I love the hot weather too but it makes me feel terrible! Such a shame isn't it , cold weather is just as bad !

[sydb]

[NanaPam]

Yes, hot weather makes me feel awful!

[Stereolover]

I used to be a typical sun worshipper but I have to be careful now. As soon as my hands feel numb I get hosed down. Usually that works but if not I get into the shade. I blame mine on MS though and not APS. MS and heat aren’t a good combination.