Interesting Summary of research aroun... - Hughes Syndrome A...

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Interesting Summary of research around blood clots found in Covid-19 patients

a_schaider profile image
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youtu.be/qoJ4VDaGSfY

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a_schaider
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GinaD profile image
GinaD

So... Conclusion is that covid may jump start activity in those antiphospholipifd antibodies?

a_schaider profile image
a_schaider in reply to GinaD

I interpret it as Coronavirus seems to have similar manifestations as the virus that causes APS. This has possible implications for its successful management, especially if started early. I am also wondering how many APS patients have contracted Covid-19 and what has been their experience. I am at high risk because my APS has caused micro clots in my lungs and I manage the resulting pulmonary hypertension with drugs.

Treetop33 profile image
Treetop33 in reply to a_schaider

Is APS caused by a virus initially?

a_schaider profile image
a_schaider in reply to Treetop33

There are many studies trying to figure this out.

rheumatologyadvisor.com/hom...

suntap profile image
suntap in reply to Treetop33

Good question. When I fell ill originally, I had pneumonia and a "mystery" virus and I was put in isolation for five days. I did have pneumonia but I also had several PE that caused the pneumonia. The hospital did many tests but could not ascertain which virus I actually had. After I got out of hospital I never improved and actually got more symptoms and went on a 6mth journey of dr's and tests to get my dx.

I often thought (jokingly) that I was Patient 0 for Corona as I had most of the same symptoms. Headache (migraine), cough, pneumonia, hypoxia, tiredness and a virus,

Maybe a virus can trigger auto-immune disease and some other conditions?

Therefore the corona virus could trigger APS in susceptible people? kind of like gestational APS?

Treetop33 profile image
Treetop33 in reply to suntap

And I sometimes wonder whether we still have a latent virus within us causing autoimmunity, though perhaps that's 'wishful' thinking?

But yes, post viral syndrome seems a rather imprecise term for the kinds of health problems that can be caused by viruses. I've been reading about the 1918 pandemic, and many people developed temporary and lifelong immune problems, low mood, blood issues, heart problems etc. And that's possibly where immune modulating drugs like hydroxy and LDN come in?

christylee profile image
christylee in reply to Treetop33

Autoimmunity would be a silver lining to having APS and all the associated trouble, wouldn’t it?

Treetop33 profile image
Treetop33 in reply to christylee

Autoimmunity is what causes APS, but triggered by what we don't know.

christylee profile image
christylee in reply to Treetop33

I should have said immunity. Don’t know what I was thinking

MaryF profile image
MaryFAdministrator

Interesting, thanks for putting this on here. MaryF

rach1081985 profile image
rach1081985 in reply to MaryF

I had flu and vomitting before my 1st episode of clots and then later diagnosed with aps

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