Covid 19 and aps: Anyone had advice... - Hughes Syndrome A...

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Covid 19 and aps

Turner71 profile image
5 Replies

Anyone had advice from their practitioner on self isolating please

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Turner71 profile image
Turner71
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MaryF profile image
MaryFAdministrator

Hi, we are all doing at my house as so many of us have multiple conditions. MaryF

HollyHeski profile image
HollyHeskiAdministrator

I am self isolating- I have APS and sjogrens, which comes under the underlying conditions.

I did read that any one on anticoagulants should also be isolating.

It's going to come that all need to stay at home other than essential journeys, this is to help others as much as ourselves.

We need to stay calm and help each other as much as possible.

Ray46 profile image
Ray46

I haven't bothered my GP, and probably won't even try, I am expecting they are snowed under.

I have the benefit of my own in-house professional who is sort-of in the medical business. We are agreed that I am definitely at risk, and I would assume any APS patient is unless/until told otherwise.

I am already social distancing from the rest of the family in-house per the govt guidelines for the over 70s and vulnerable, we've had our last hug for a while. We are working through internal self-isolation and hygiene / biosecurity procedures together, aiming to have them in place by this weekend (_currently_ estimating risk from the local area to be relatively low, we are not in London...). It is not easy at all in a house with only one kitchen and bathroom, and it helps to have someone who knows what they are doing - I had no idea biosecurity was this hard :-(

At the end of the day though, if there are COVID-sick people in the house, social distancing isn't enough and even our biosecurity will leak (risk reduction, not elimination). Therefore plans are also being made for me to exit via back door and move out to isolate elsewhere if anyone else gets symptoms. This is in the govt. guidelines too, although it's a bit vague ("try to arrange for them to stay with friends or family") - our working assumption is that I will need isolate as well, as if still part of the isolating-household, and this should apply to anyone I move in with, a heavy burden to inflict on others. So my bolthole options are single person, will not be pleasant, not something I'm looking forward to, last resort just-staying-alive stuff.

May be worth noting that that my wife's normal attitude to APS is "is your warfarin where doc says it should be, yes, so stop whining, man up and get on with it, it's not like you've got anything serious". Two weeks ago her attitude to this virus was similar and she thought I was worrying too much, now she is the one who wants me out of the house, and preferably right now, to be safe (I'd rather be with my family). She is also the one that knows NHS consultants socially, rather than as a patient. 'Nuff said.

Debbweb01 profile image
Debbweb01 in reply to Ray46

Hope u get all this resolved and stay healthy! Be well and what you r doing sounds very articulate! You’re doing well my friend! Just keep doing what ur doing and you’ll b fine!!! Godspeed

Debbweb01 profile image
Debbweb01

Yes my doc isn’t seeing patients so I go to those clinics One here and around my Country is called City Md. they’re great! Better than my doctor! I’m in NY where it’s crazy Godspeed and please b safe

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