Numb and tingling hands/arm. Should I be concerned?

[annabanana23]

Hi everyone,

I'm 28 years old and was diagnosed with a DVT 6 days ago (currently on 20 mg eliquis and 81mg aspirin daily), this is my second DVT in 8 months. I've had borderline positive and a string of negative cardiolipin antibody tests, but have various autoimmune manifestations (Raynauds, livedo reticularis, migraine etc.)

Yesterday I began having a tingling sensation in my left fingers, and slight numbness. This has progressed up my arm. No other stroke symptoms. I asked my rheumatologist about this and he said I should keep taking the Eliquis at that high of a dose for another week. I'm scared though, could this be a TIA? I'm nervous about visiting the emergency room due to the Covid outbreak.

Have any of you experienced this?

Thank you so much!

[MaryF Administrator]

Hi, keep in touch with our main specialist, and when you next get asked to see them or have a phone consultation please do also ask them if any blood tests indicate if you need help with B12, D, Ferritin and your Thyroid, if symptoms increase, do please ring them for advice, they will be keen to help you remotely and keep you out of over stretched facilities. They may need to review your medication over to Warfarin or one of the injectable anticoagulants, do you have a proper Hughes Syndrome/APS consultant? MaryF

[HollyHeski Administrator]

It could relate to anything including your raynards or anxiety.

Start making notes of how you feel, whether it comes and goes or is persistent.

As Mary says B12, ferritin and your thryroid may need to be checked?

See if you can get a telephone appointment with your consultant to talk this through.

Yes avoid A & E at the moment unless you are really considering this to be serious. 111 is another alternative but they won't be knowledgable about APS.

[KellyInTexas Administrator]

Hello Anna banana,

Firstly, do you mind me asking where you clot? Where are your DVT’s ?

Also, I know when my blood gets over all too thick and sticky I can feel tingly and numb... but it’s also in my head and lips... and I can feel faint. ( I’m generally extremely in well. )

I experience DVT’s in my Brachials and ulnar- so I can have my arms go tingly from that - poor flow- but otherwise feel ok,

Or can have both simultaneously. ( sticky blood leading to clotting...)

I’m very interesting in HOW you are dosing the Apixiban. ( Eliquis.)

I’m thinking you should call your Rheumatoligist and ask if you can split the dose to 10mg am and 10 mg pm. ( I believe your peak is a bit high and you are troughing out - or a better was to say it is it’s leaving your system before the 24 hours comes around.)

I think you would have steadier and better / smoother protection at 10 mg every 12 hours.

I was clotting through warfarin at a fairly high INR. ( demonstrating a DVT at 4.8)

I was switched to lovenox ( enoxaparin) at every 24 hours at 1.5 mg per kg. Yes- with a higher dose it’s supposed to stretch a little further time wise- but with APS it doesn’t. APS specialists know to dose it at 1 mg per kg every 12 hours.

A little less- but more often.

I was switched by an APS specialist to Apixiban ( eliquis) to 10 mg am and 10 mg pm. I did clot through it right away. She knew I might- and had the back up plan for enoxaparin at the 1 mg per kg every 12 hours if it happened.

Please call tomorrow and ask if you can switch to 10 mg every 12 hours.

If you have further questions you are welcome to ask.