Lupus anticogulant confusion

[xSarahx]

Hi. A few years ago i was tested for lupus SLE as i have majority of symptoms. Turned out it wasnt lupus SLE it was in fact lupus anticogualant. I was changed contraceptive pill and told to stop smoking to decrease chances of blood clots. I cannot find much information on lupus anticogualant except leading me to APS. I now see APS stems down to around 5 different names including hughes syndrome and lupus anticogualant and a few more. I am just concerned because if i have APS then im high risk for catching this coronovirus. Are you able to explain to me what lupus anticogualant actually is and if im any risk to ifections etc as its antibodies. Thank you

I had the 2 tests 12 weeks apart and both positive. My rheumatologist never said anything else except it's not lupus sle it is lupus anticogulant so suggested I come off the contraceptive pill I was on and try smoke smoking. He never referred me or tood me anything else to help me understand and this was now 4 years ago..

Just spotted old messages and they are truly appreciated but right now I’m so confused and wondering if anyone can shine any light into my question, that doesn’t lupus anticoagulant mean I actually have APS? Thanks again folks

[KellyInTexas Administrator]

Hi Sarah!

Thanks for joining. Glad you found us!

Can you tell us what your family history is and personal clotting history is- and pregnancy history is if applicable?

To answer your question about Corona Virus, you are not more susceptible unless you are on auto immune suppression medications or infusions. There are specific flow charts I can post for those interested. The NHS has them listed.

If you have never had a clot, your Rheumatoligist may not have sent you on to a hematologist.

Usually an anti platelet would be added after reviewing that you are safe to be on it. ( no ulcers, etc.) if you are not put on warfarin. Only your doctors (must be a doctor very familiar with APS) can say if you need an anti platelet. Neurological involvement usually requires a little anti platelet. ( depends on many factors.)

diagnostic criteria :

rheumnow.com/content/2019-e...

[MaryF Administrator]

Hi, there, welcome, a lot of people arrive here having been through every name possible for this disease. KellyInTexas has mentioned about the immune suppression medications or infusions, if this is the case then yes self isolating would be a good idea. I am not on these medications but I have a house full of people with Lupus and Hughes Syndrome/APS and other disease, so we are taking the greatest of care with every aspect of our lives. Yes you have Hughes Syndrome/APS. Do feel free to ask questions, if there is anything else you need to know about. MaryF

[jetjetjet]

Yes it was called LA when i was diagnosis ed in 2009 BUT very shortly afterwards {according to my then Doctor } it was no longer refereed to as LA and now because of the LA found in blood as memory serve's me. It would be refereed to as APS or Hughes Syndrome , Sticky blood . and my favorite { Sludge Blood's } just what i like to call it Ha . You have lots of very great people on here so ask away you will get answers . Two tests , 12 weeks apart , coming back positive i would think y your Doc. would say you have APS / Hughes. best to you and welcome here .

[xSarahx in reply to jetjetjet]

Thanks for taking the time to reply it means a lot. Thank you ..