Covid 19 risk factor or not? - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Covid 19 risk factor or not?

Downtime13 profile image
7 Replies

Hi this is my first post but on here trying to work out what risk covid 19 is to me so I can work out if to offer my help on the front line. I had 6 pregnancy losses and one very prem birth 10 years ago so down as moderate risk. I get alot of issues with joints&muscle pain and raynauds type issues in my feet. Unsure if to offer services with as a single parent family or not. Its unclear and I wondered what others have found out?.

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Downtime13
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HollyHeski profile image
HollyHeskiAdministrator

For me, I've stepped down from front line duty, but still busy doing welfare checks on telephone to isolated vulnerable people. Compromise for all.

Downtime13 profile image
Downtime13 in reply toHollyHeski

Thanks for your reply. Do you have other risk factors?. I hope you dont mind me asking. I think they have said lupus is in the high risk category and this shares element s of lupus?. Hard to know what's best.

HollyHeski profile image
HollyHeskiAdministrator in reply toDowntime13

Lupus uk have got a really informative bulletin out, here, on twitter and on their website.

I have APS, Sjrogens, and Raynards, I don't feel I am at any more risk of getting the virus but like others really don't know how my body would cope getting through it.

The high risk Lupus cases are those that are on immunosppression drugs.

MaryF profile image
MaryFAdministrator

Hi, I am doing some work in my community and on behalf of my partner, but I am doing it from home. MaryF

Downtime13 profile image
Downtime13 in reply toMaryF

Thanks for your reply,

has Anyone heard from any specialists about covid 19 and APS?

GinaD profile image
GinaD

Sorry -no real data backed advice here. But given the data, it will be interesting to see what pre-existing conditions effect covid 19 reaction. Does autoimmunity increase resistance? Or do our high IgG numbers make our inflammation reaction so extreme that more lung cells die and so increases risk of death? Who knows? Me? I'm trying to stay careful, but not hyper-paranoid.

Downtime13 profile image
Downtime13 in reply toGinaD

Thanks, yes that's the approach I'm taking. I'm guessing we dont know enough about this virus or our own immune response to it to know yet so its better to stay safe. Tbh I dont feel that the 2m apart is enough as droplets go further than that so it's better to just stay at home and wear a mask when out and gel or wash hands if possible. Taking other precautions too like wiping things as they come in and increasing vitamins and nutrients. Think that's basic level stuff in these times.

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