I hope this family get the right answ... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

I hope this family get the right answers and treatment!

MaryF profile image
MaryFAdministrator
7 Replies

dailymail.co.uk/health/arti...

I have been in touch with one of the parents, sent them our charity website, and the relevant medical doctors off our list for that country, I will keep you updated.

MaryF

Written by
MaryF profile image
MaryF
Administrator
To view profiles and participate in discussions please or .
7 Replies
leakeadea profile image
leakeadea

That poor family!

We think of strokes as being something that only older people experience, it's shocking to hear of such a child having one!

MaryF profile image
MaryFAdministrator in reply to leakeadea

They have all the right information now for the medical team over there. MaryF

leakeadea profile image
leakeadea in reply to MaryF

Even scarier when something like this happens overseas 😨

KellyInTexas profile image
KellyInTexasAdministrator

❤️Mary!

HollyHeski profile image
HollyHeskiAdministrator

Thats so sad, hits home when its a child. Do they now know about Hughes/APS?

MaryF profile image
MaryFAdministrator in reply to HollyHeski

Yes, see my replies above. MaryF

jetjetjet profile image
jetjetjet

Great Job my friend -- Bless her and you . !!

You may also like...

I can't get my right leg to \"wake up\".

Has good pedal pulse and only slightly cooler than left. Should I be concerned?

Please be aware I may be slower at answering questions and posts!

putting the notification header in my safe mailing list nothing, not a sausage. So until I can...

Finally getting somewhere... hopefully

so haven't looked at it and my rheumatologist has left so I'm waiting to bring this up with the new...

Should I get checked?

Should I get a second opinion?