Hematologist : Does anyone recommend a... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Hematologist

Kstone81 profile image
13 Replies

Does anyone recommend a hematologist and/or neurologist in Arizona that understands APS?

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Kstone81 profile image
Kstone81
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13 Replies
MaryF profile image
MaryFAdministrator

Hi there, we do have some medical consultants listed on our charity website, and apart from that, members on here from the USA will usually tell you who is nearest to your location. Hopefully you will receive a few answers soon: ghic.world/

MaryF

Wittycjt profile image
Wittycjt

I responded on the other post where you questioned this, did you not get my response?

Wittycjt profile image
Wittycjt

Dr Lynn Cleveland in Hot Springs, Arizona

Kstone81 profile image
Kstone81

Hi she’s in Arkansas.

Wittycjt profile image
Wittycjt in reply to Kstone81

Hmm let me reach out to the person who gave me this, I wish I would have known that, I’ll get back to you when I find out the problem

Wittycjt profile image
Wittycjt in reply to Wittycjt

My mistake, apologies. I thought AR was Arizona but it is Arkansas. Oops. Let me see what I can find...

Wittycjt profile image
Wittycjt in reply to Wittycjt

Mayo Clinic in Phoenix/Scottsdale Arizona possibly?(480) 301-1735 for appt?

Wittycjt profile image
Wittycjt

Any help from Mayo?

Kstone81 profile image
Kstone81

The problem I run into is I’ll call around and doctors offices say they treat those conditions but then after I pay my co-pay and I wait months to get in then I find out the doctors actually don’t have much experience with it and. That’s why am looking for a referral from somebody who’s been to in an actual Doctor Who knows that they know what they’re doing in talking about. I’m a nurse and I know that plenty of doctors BS things

Wittycjt profile image
Wittycjt

GinaD maybe you can help you’ve been to a Mayo Clinic and recd treatment, any guidance you can share?

KellyInTexas profile image
KellyInTexasAdministrator

I saw a neurologist at Scottsdale mayo location. You can pm me.

JessicAZ profile image
JessicAZ

I requested an appt for APS at Mayo in Scottsdale and was turned down because no doctors treat it. I have a decent hematologist (Dr Stanek and Banner MD Anderson in Mesa). He's older and is very old school in his approach to treatment. Still have yet to find a knowledgeable rheumatologist or neurologist out here.

Wittycjt profile image
Wittycjt

I posted below on other post , new addition for Arizona Dr Elisa Bomgaars

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