Good Evening All
My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer never had a heartbeat, my wife had to give birth etc etc
At week 13 she started on a aspirin and a 60mg of Clexine injection a day. Everything was going well until our scan.
Anyway after this she ended up with blood clots in her lungs and a platelet count of 7.... Lowest our hospital had seen, they put her on steriods to boost this and it came up for a week or so to 127 then dropped back down.
She was then put on warfarin also but they have now taken her off this as they thought she had a brain bleed turned out she didnt but her platelets were down at 10 so she got a IGG drip and a platelet transfusion.
Anyway fast forward 2 weeks and she is on dapsone (excuse my spelling) and a couple of other tablets.
The dapsone has not helped her platelets shes was at 130 last week and 67 yesterday so they are taking her in on Wednesday to put her on a Rituximab drip.
We are both scratching out heads now as the NHS where we are don't know how to treat APS (We are based in Inverness) does anyone know of a private doctor or another NHS doctor in Scotland or even the UK who could help us.
Sorry for the long winded post, hoping it makes sense, my wife asked me to type is as it would take her ages haha.