I hope this family get the right answ... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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I hope this family get the right answers and treatment!

MaryF profile image
MaryFAdministrator
7 Replies

dailymail.co.uk/health/arti...

I have been in touch with one of the parents, sent them our charity website, and the relevant medical doctors off our list for that country, I will keep you updated.

MaryF

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MaryF
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7 Replies
leakeadea profile image
leakeadea

That poor family!

We think of strokes as being something that only older people experience, it's shocking to hear of such a child having one!

MaryF profile image
MaryFAdministrator in reply toleakeadea

They have all the right information now for the medical team over there. MaryF

leakeadea profile image
leakeadea in reply toMaryF

Even scarier when something like this happens overseas 😨

KellyInTexas profile image
KellyInTexasAdministrator

❤️Mary!

HollyHeski profile image
HollyHeskiAdministrator

Thats so sad, hits home when its a child. Do they now know about Hughes/APS?

MaryF profile image
MaryFAdministrator in reply toHollyHeski

Yes, see my replies above. MaryF

jetjetjet profile image
jetjetjet

Great Job my friend -- Bless her and you . !!

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