We all know how hard real help is to find in the form of specialists so I wanted to share my recent experiences.
Yesterday I saw Dr Gillian Evans at Kent and Canterbury Hospital. She was amazing. She really 'got it'.
She didn't have a magic wand but she really saw and understood what was going on physically and how that made me feel emotionally. She had a lot of knowledge and did her best for me, as did her nurse Michelle.
My rheumatologist is Dr Denise DeLord who understands APS (as well as Lupus and Sjogrens and Fibromyalgia that I have too) she definitely goes the extra mile to help me.
I do always take a supporter with me and I always prepare for appointments. (This helps make the most of the appointment time).
I feel more hopeful than I have for a very long time - I wish the same for you all 💋