Tinnitus and pulsating tinnitus - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Tinnitus and pulsating tinnitus

Steph626 profile image
9 Replies

I have lupus and APS... Just wanted to check to see if anyone with APS has these symptoms or if it’s something else ... anyone have ringing in your ears or pulsating ear drums??

Thx! 💜

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Steph626 profile image
Steph626
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9 Replies
ndstephens49 profile image
ndstephens49

Yes, have had tinnitus for many years in both ears.

Nancy in West Virginia

Fra22-57 profile image
Fra22-57

Yes I have tinnitus. Annoying I know.My husband has aswell but in both ears but doesn't have APS same as me

CarolBSL profile image
CarolBSL

Morning

Yes, I have tinnitus, and have pulsating in my ears at times, especially at night when in bed I notice it. It is heartbeat related and the whoosh of blood carried to the brain through the carotid artery I believe. It passes close to the ears. That’s my theory at least.

tiredmum profile image
tiredmum

Yes, I have it too. Can be so frustrating especially when trying to go to sleep. I get the feeling it is common.

a_schaider profile image
a_schaider

Yes I had a severe case of it that lasted a few years before I was put on Coumadin, aspirin, and Adempas. It was related to my Intracranial Hypertension most likely caused by microclots. Microclots also caused my ocular migraines, papilodema , extreme vertigo spells and major lethargy. Have been relieved of all of these symptoms by keeping my INR at 3.5-4.5.

leakeadea profile image
leakeadea

I experience tinnitus too, ringing in my ears, whooshing etc. I get the pulsing/drumming sound you mention too. My hearing in one ear will also fade in and out sometimes and I have episodes where I can barely hear at all in one ear, or the other.

I find that it helps to have a fan on in the bedroom when trying to get to sleep, as the sound of the fan seems to help to override the sound of the tinnitus.

GinaD profile image
GinaD

My tinnitis starred at age 7 and has continued ever since. Its my normal. I do note that at times it is louder, and sometimes the pitch changes or another musical note is played higher then my srandard tinnitis chord,

MaryF profile image
MaryFAdministrator

Hi there, it is quite common on here and normally to do with micro clotting, Manofmendip knows quite a bit about this symptom. MaryF

Wittycjt profile image
Wittycjt

I have it when my blood sugar is low it also causes me a bee buzzing sensation... I hate it, hugs

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