Just diagnosed and pregnant (again) - Hughes Syndrome -...

Hughes Syndrome - APS Support
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Just diagnosed and pregnant (again)


Hey everyone! I'm 30 and just have been diagnosed with Hughes Syndrome. I had a stroke 5 years ago and 2 pregnancies that didn't go well.

I am thinking about going to the The London Lupus Centre in London Bridge Hospital, although I live abroad. Can anyone recommend me a doctor? I've heard of Dr. Patrick Gordon, Dr Arvind Kaul and Dr. Natasha Jordan. It seems like Dr. Hughes does not accept new patients.

Thank you so much!

10 Replies

I see Dr Kaul who is excellent . A lovely and understanding Dr who listen to you . He certainly worth considering if you're looking to see one of the recommended specialist. Hope this helps good luck

INCR in reply to CAROL-R

Hi Carol, thank you so much for your recommendation! :) All the best!

CAROL-R in reply to INCR

As you are pregnant (Congratulations) you may be better seeing one of the listed obstetrician .You can check the list on the APS website

INCR in reply to CAROL-R

Ah great! I'm going to check that. Hope it all goes well this time! :)

MaryFAdministrator in reply to INCR

Our list of consultants is on the right hand of the forum under pinned posts, MaryF

I saw raj rai at st Mary's in London who is a specialist in pregnancy and Hughes and without whom I am sure I would not have my little girl. Wishing you all the very best. X

INCR in reply to starships

Thank you!


Welcome, It is a good idea to visit the centre, many from abroad on this forum, regularly do this. People will tell you have they have seen at that clinic MaryF

INCR in reply to MaryF

Travelling during pregnancy makes me a little nervous. I'm going to see an internal medicine doctor in August and see what she recommends! But after the pregnancy I'll go to the center for sure...

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