Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2017

This is my 1st post is their such a thing as a silly question?

I was diagnosed 4 years ago but only things I know are from this site and books my Daughter bought. I have had numerous health problems, but no joined up...

I was diagnosed 4 years ago but only things I know are from this site and books ...

SueH21

•7 years ago

12 Replies

What type of Misscarraige does APS cause?

My daughter-in-law has suffered from headaches and migraines from her teens. She had a brain MRI a few years ago and they were concerned on examining the...

My daughter-in-law has suffered from headaches and migraines from her teens. She...

WendyWoo50

•7 years ago

11 Replies

Hydroxychloroquine and tinnitus

Has anyone else developed tinnitus while on hydroxychloroquine? I have been taken of my hydroxychloroquine by gp as she suspects octoxicity. I did not know...

Has anyone else developed tinnitus while on hydroxychloroquine? I have been take...

kaz41

•7 years ago

6 Replies

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New Mission -- Raising Awareness of APS

My wife gets frustrated about the lack of understanding of APS among the many doctors she has seen. If only someone had explained to her early on how...

My wife gets frustrated about the lack of understanding of APS among the many do...

SquarePegGuy

•7 years ago

22 Replies

Just terrified😢

Hi everyone I am 16 weeks pregnant I was just recently diagnosed with aps...I have a healthy 7 year old son and lost my twins at 26 weeks in 2011 and lost...

Hi everyone I am 16 weeks pregnant I was just recently diagnosed with aps...I ha...

Sarahals

•7 years ago

13 Replies

Can being on aspirin therapy cause a false negative on a anticardio lip in antibody test

I know the ? Has been answered but I need that answer asap Thank u

SoulRebel-APS

•7 years ago

5 Replies

Hormone replacement therapy for menopause.

Since we are already on blood thinners, is it still recommended we don't go on hormone replacement (HRT) for menopause? I've been doing some reading about it...

Since we are already on blood thinners, is it still recommended we don't go on h...

mylafont

•7 years ago

25 Replies

What strategies do you use to help you remember things?

I set a timer for a lot of things. I leave the cans of dog food on counter to remember to feed my dog🐶

I set a timer for a lot of things. I leave the cans of dog food on counter to re...

Wittycjt

•7 years ago

6 Replies

Cancerologyoncology on twitter interesting find? About primary APS disappearance? Anyone understand this?

If you do please explain, as I don't understand what it means. It's on SB-HSS twitter, thanks

If you do please explain, as I don't understand what it means. It's on SB-HSS tw...

Wittycjt

•7 years ago

6 Replies

Wishing you all a Happy Valentine's Day

Hello, whether celebrating together or alone, wishing everybody a Happy Valentine's Day from one side of the world to the other. Mary F

Hello, whether celebrating together or alone, wishing everybody a Happy Valentin...

MaryF

Administrator•7 years ago

5 Replies

So confused...went to see a Vascular doc at a #2 clinic in the states...

Quick background: 2 years ago I had an unprovoked ( I was on birth control ) bilateral pe. I was put on Xarelto and tested positive for APS twice, 6 weeks...

Quick background: 2 years ago I had an unprovoked ( I was on birth control ) bi...

aburch

•7 years ago

2 Replies

Looking to see if anyone else lives in Boston/Providence Area?

Is there anyone on this forum who happens to live in Boston area or Providence area? I would love to know what they are doing to treat APS and who they see...

Is there anyone on this forum who happens to live in Boston area or Providence a...

Saltydogs

•7 years ago

3 Replies

Phantom Smells Back/Phantomsmia plus update!

I'll try to make this short n sweet! I woke up smelling oil, went to my basement and it got worse, saw oil leak by my oil burner! Yay I say I don't have that...

I'll try to make this short n sweet! I woke up smelling oil, went to my basement...

Debbweb01

•7 years ago

3 Replies

Tested positive twice, then negative

Hi all After having a DVT in my calf and two PE's at the age of 43 I tested positive twice for antiphospolipid antibodies, 6 weeks apart. My heamatologist at...

Hi all After having a DVT in my calf and two PE's at the age of 43 I tested posi...

NeilNicholas01

•7 years ago

2 Replies

Please help!

Hello APS family. How is everyone doing? I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it. I...

Hello APS family. How is everyone doing? I am very happy to have found this f...

Textra88

•7 years ago

5 Replies

Cancer of the tongue

Hi all sorry i have not been on line for sometime.. as i have been unwell... i have aps with alot of problems ..i was told that i now have cancer of the tonque...

Hi all sorry i have not been on line for sometime.. as i have been unwell... i h...

Budleighgeorge

•7 years ago

7 Replies

APS and vaccines

I just read an article that swears APS is linked to the tetanus vaccine. Is this true or a conspiracy theory?

I just read an article that swears APS is linked to the tetanus vaccine. Is this...

Raking223

•7 years ago

41 Replies

Does anyone get the feeling of really cold nail beds, not hands just nail Beds?

Weird! I get this every now and then, but really take notice to it when it occurs

Weird! I get this every now and then, but really take notice to it when it occur...

Wittycjt

•7 years ago

2 Replies

Gabapentin

Gabapentin has been increased to 3600 ml's per day . This was done to try to help with my ongoing tremors-Muscle spasms , numbness and the tingling to pain...

Gabapentin has been increased to 3600 ml's per day . This was done to try to h...

jetjetjet

•7 years ago

18 Replies

LA test interpretation

Here is a different LAB that tested my bloods and said I was positive for LA. I don't know how they came about it on this test. Each test has several pages. I...

Here is a different LAB that tested my bloods and said I was positive for LA. I ...

blizzard2014

•7 years ago

7 Replies

Newby currently being investigated for APS

My recent history is that I was diagnosed with cutaneous follicle non hodgkins lymphoma last October. I had to have a full body CT to check if disease was...

My recent history is that I was diagnosed with cutaneous follicle non hodgkins l...

Pinkbubble28

•7 years ago

13 Replies

INR too high now!

As u know I've had a lot of trouble left getting my INR high enough. Well last night I went for a check only to find that it had shot up from 3.5 to 4.8 in 7...

As u know I've had a lot of trouble left getting my INR high enough. Well last n...

WendyWoo50

•7 years ago

3 Replies

Labs for APS

Here is a portion of my labs that prove that I have APS. Just in case there is any doubt. I will post a second thread with the portion of my labs that show...

Here is a portion of my labs that prove that I have APS. Just in case there is a...

blizzard2014

•7 years ago

8 Replies

"warfarin can lead to false-positive test, but not false-negative tests"

From **** Clinic Hematologist: I had a detailed discussion with patient regarding the lupus anticoagulant testing, and I have explained to him that to call a...

From **** Clinic Hematologist: I had a detailed discussion with patient regardin...

Blakerm

•7 years ago

22 Replies

FYI: Found very "APS " informative book

It's called" Positive Options for Antiphospholipid Syndrome(APS)" on eBay by Triona Holden. It's for self help and treatment. Explains thing in basic terms...

It's called" Positive Options for Antiphospholipid Syndrome(APS)" on eBay by Tr...

Wittycjt

•7 years ago

3 Replies

Feeling light headed and unwell

Last few days was feeling very in well light headed and strange thought I may be having a Tia but got a strange pain in top left side just under ribb cage...

Last few days was feeling very in well light headed and strange thought I may be...

Tim_Thorpe

•7 years ago

4 Replies

Guidelines on INR

I am getting a referral to see a specialist on APS I need answers to why things have started happening like before I had a stroke, all very scarey. I was also...

I am getting a referral to see a specialist on APS I need answers to why things ...

Dot69

•7 years ago

15 Replies

Arnica tablets whilst taking warfarin and aspirin

Does anyone take Arnica tablets whilst taking warfarin and aspirin? I was kicked by a horse last week in the leg and have lots of bruising and wondered if...

Does anyone take Arnica tablets whilst taking warfarin and aspirin? I was kicked...

AvsG

•7 years ago

5 Replies

Does anyone take lovenox injections once every twelve hours routinely?

And how is the dose ordered: Based on weight or what? Thanks, trying to educate myself.Cindy in NJ

And how is the dose ordered: Based on weight or what? Thanks, trying to educate ...

Wittycjt

•7 years ago

9 Replies

Confused

Two years ago I had blood tests as my period were irregular. My doctor decided to a full blood count & test for von wilebrand The test results came back I had...

Two years ago I had blood tests as my period were irregular. My doctor decided t...

SophieLeigh

•7 years ago

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2017

This is my 1st post is their such a thing as a silly question?

What type of Misscarraige does APS cause?

Hydroxychloroquine and tinnitus

New Mission -- Raising Awareness of APS

Just terrified😢

Can being on aspirin therapy cause a false negative on a anticardio lip in antibody test

Hormone replacement therapy for menopause.

What strategies do you use to help you remember things?

Cancerologyoncology on twitter interesting find? About primary APS disappearance? Anyone understand this?

Wishing you all a Happy Valentine's Day

So confused...went to see a Vascular doc at a #2 clinic in the states...

Looking to see if anyone else lives in Boston/Providence Area?

Phantom Smells Back/Phantomsmia plus update!

Tested positive twice, then negative

Please help!

Cancer of the tongue

APS and vaccines

Does anyone get the feeling of really cold nail beds, not hands just nail Beds?

Gabapentin

LA test interpretation

Newby currently being investigated for APS

INR too high now!

Labs for APS

"warfarin can lead to false-positive test, but not false-negative tests"

FYI: Found very "APS " informative book

Feeling light headed and unwell

Guidelines on INR

Arnica tablets whilst taking warfarin and aspirin

Does anyone take lovenox injections once every twelve hours routinely?

Confused

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